Originally Posted by catra121
I am so very sorry to hear what you are going through right now. Not sure who diagnosed you with CRPS but I hope that you will be seeing a pain management doctor very soon? If that's who diagnosed you then you need to call them ASAP to see what can be done for your current situation.
CRPS doesn't necessarily respond to the same pain killers that you would use for other stuff (assuming it responds to anything) and unfortunately everyone is different with regards to what meds they respond to or not. Narcotic pain killer (norco/vicadin) had absolutely zero effect on my CRPS pain. Lyrica, Neurontin, Tramadol, Cymbalta...these are all fairly normal ones to start on with CRPS but there are others.
As for what you can do RIGHT NOW...not sure but some things to try would be a hot bath with epsom salts (this usually helps to take the edge off of my pain)...and definitely NO ICE as this can make the CRPS worse and even cause spread in some cases. There are also those heating patches that stick on that you can buy at the pharmacy...those help me with the pain as well since I can't very well sit in a hot bath all day...the water would eventually get cold. You might also try an NSAID pain reliever like Aleve...NSAIDs are also commonly prescribed for CRPS (though obviously in prescription strength)...so that might help (just be careful that it doesn't interact with any meds you are currently taking since I don't know what those are). I'm not a doctor but from my experience those might be the best things to try to help right now.
But you need to get yourself to a doctor ASAP and get the pain levels down. I am so so sorry for what you are going through. I wish the doctor who diagnosed you would have given you some precautionary information so that you might not have gone ahead with attempting to have the tooth pulled. If all else fails and you can't get ahold of or in to see your pain doctor like tomorrow then maybe you need to go to the ER. They are not usually the best option for treating CRPS but if you are suffering they might be able to help take the edge off or even put a call in to your doctor's office to see if they can get you in sooner.
I'm so sorry...hate to hear you suffering. I wish I could help more. If you have any other questions or anything I will be happy to try to answer.
lets see...my pcp diagnosed me. started w burning pain in both arms in sept 2011. he had a nerve test done, supposedly it was fine that was jan 24 2012. i see nuero on fri at 8am. mornings are better for me but crps pain and swelling worse in late afternoon. i take hydrocodone for my back which i guess may help crps, current gabapentin 100 mg 3xday, soon to be 200 mg 3xday and working up to 300 3xday, i have flexeril for bed time and thruought night. thats it for crps meds. hubby went and got a moist heat therapy pad we can heat in microwave, i can hardly talk the pain is horrible worse is i still have damn tooth, now mind u the tooth wasnt hurting before i went in. my ears are thumping which worsens the pain, why idk, crazy crazy. i just cry from pain. im scared, no one around me hsa ever heard of this. i felt like i was crazy for months.