Originally Posted by Chemar
I have added the link to the article for you.
Our forum has defaults to block website redirects for new members, so preventing spam...but as this is something very different, I have made an exception
all the best to you
Thank you, Chemar!
It is with irony we have to welcome new members, but as you'll learn this disease is full of irony and paradox. I really enjoyed your essay. I too have YO, I was on the watch list for 5 years as I looked more Essential Tremor until I turned 41, learned I had PD, then discovered I was pregnant. Talk about ironies- how could I have an "old person's disease and be pregnant?"
You have come to the right place for advocacy and alternative treatment information. We are not exactly known for dispensing the warm fuzzies but dive into the archives and you'll soon probably know more than your neurologist does. That is both good and bad.
In deciding to disclose, yes, there comes a time when hiding it becomes so stressful that you have to tell others. It is rather a relief but people will not always show compassion. You are spot on with your observation as well. I guess because PD is so rare in younger people, it is understood and encountered far less than Cancer, and others want to disassociate from it- they don't want to think it can happen to them, so they treat us differently. Once you disclose, you learn that true friendship is rare. Why is it we have a sense of shame? Like we chose this disease? Many of us were heathy, ate organic foods, etc. Just as Cancer is indiscriminate, so is Parkinson's. By stepping up you have helped all of us lighten the the (unacknowledged) psychosocial load of living with PD. Hope you decide to continue posting here.
Do you mind if I share your Forbes piece? I am a member of a FB group of professional women with YO PD. We have noted the shame factor, and I think they will relate to your story.