Originally Posted by lema56
I don't know about the chest pain for me, but when I have flare ups, I cannot really relax. But, I also have rsd in my left hand and arm. What helps you? Do you go out in the rain, cold, or heat? Do you wear a arm sleeve?
I've found hundreds of things that help and thousands that don't. Most things don't seem to matter much. The number one thing is to be distracted from the pain. This means don't think about it. Don't think about things that remind youof it. I'd love to spend countless hours here talking about things and tryinmg to console people but it reminds me of the RSD so I just visit from time to time when I'm at my best or my worst.
A wrap on the hand is critical for me to keep it warm, I think. I also wear a sock on my left foot and sometimes a foam support of left elbow. At night in sproing and fall I have one sleeved pajamas. Diet is critical. Too much or too little salt will always bring on a flare. It used to be hard to hit the right mark with salt intake but the range is wider now so it's easier. Some chemicals like sodium nitrite have to be avoided. Small amounts don't bother me but larger amounts do. Watch out for water laden fish and meats since they use a chemical called sodium trypolyphosphate to get it to suckup the water. I can't tell this hurts anything but my wallet but it interferes with maintaining the right salt levels. Warmth is great and warm water is heaven. Any more than about 45 minutes a day in hot water though leads to panic attacks.
I used to have difficulty using a tens because it exascerbated my tremor that keeps me awake but recently it hasn't been as bad. I'm also doing something very counterintuitive and using the tens closer to bedtime. It seems the medication is more effective against the tens induced tremor if it closely follows it.
Themore work I do the better I feel. I've always had trouble with exercise but had lots of activity in work and play so it didn't matter. Now I have to exercise because I'm not very active. Work not only reduces the amount of exercise I need but it makes me feel useful.
There are just lots of little things I've found that help. Most are really nothing but it seems part of what we need to do is lessen the "load" on the nervous system. Lessening mental and physical stresses are key. Ghinko biloba (~180 mg/ day)(120 in AM and 60 in PM) helps me tremendously. Having a good doc who understands your trouble is really important too.
I try to stay comfortable but of course this isn't too easy anymore. I used to be comfortable at any temperature but now 71 can be too cold and 72 way too hot. I use multiple thermostatically controlled heaters to keep the temp in a narrow range and I raise or lower the range as necessary and change attire continually.