Some will be irritated with me for pushing the Swank diet, but I HAD to go on Swank because I knew I could not try any of the MS meds. I'd already failed to be able to take Baclofen or Zanaflex, and my neuro put me on magnesium for spasticity, and that worked. Later I was dx'd with Porphyria, and now we know why I could not take a majority of meds (I can take some meds, such as the "Safe" ones on the Norwegian Porphyria Society list).
when I got another disease, Polycythemia Vera, I tried to take the meds for that, one of which was Interferon Alpha. But I could not do it without totally disabling side effects. So I quit, and I deal with this disease primarily with good diet and other healthy living rules....but I did finally take radioactive phosphorus to lower my platelets--the radiocative phosphorus (p32) does NOT affect me like the meds, but of course it has other dangers.
I recommend everyone try the Swank diet (low saturated fat) and also read labels to avoid MSG and other harmful additives, artificial sweeteners, etc.
Use your creativity to find things that taste good and don't hurt you!
Originally Posted by Shadiyah
I have injected myself before and I know some can't do that. and I really do not want to stop walking but for me it just seem to be a waste of time and money. my symptoms never go away and just seem to increase.
so I am just trying to be realistic about my situation but get some feed back from some of you that have been doing this for a long time. oh and I forgot to add that I am 51yrs old all my kids are grown and I am a grandmother to 4 I just want to be realistic.