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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

hi i am new....got me a mystery. docs are at a lost

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Unread 04-28-2012, 07:04 PM   #1
jfowler12
New Member
 
Join Date: Apr 2012
Posts: 1
Default hi i am new....got me a mystery. docs are at a lost

Foods I Can Eat:

Overcooked Veg, Pasta, Milk (warm), Ensures/Protein Shakes (warm), Tea (warm)
Soup (no meat), Desserts
Eggs, Baked beans, Potatoes, Rice, Pot Pies (veg only), Cereal (soggy with milk), yoghurt

Foods I don’t eat often –hurts too much
Pizza
Bread

Foods I Can NOT eat
Cold Liquids (milk or shakes)
Veg (under cooked veg or raw)
Anything crunchy or sticky
Corn on Cob
Thick things (greek yoghurt)(hard to swallow)
All meat in any form
Anything requiring chewing


I am able to eat at the earliest 12 (noon) and find it easier to eat late in the day. Otherwise my jaw is too sore. I often wake with jaw stuck open and dry. I am usually hungry enough to eat first thing when I wake but choose not to due to the pain in my jaw.(Would prefer all food pureed – have not done this too often)

Things I have tried:

- Exercises (cause pain) (given to me by cousin who is a Physiotherapist)
- Night guard (cause pain)
- Pain meds (naproxen, Advil, Tylenol, etc)(nothing happens)
- Elavil 20mg at night/10mg in the am (helps with sleep not so much with pain)
- Acupuncture (varied results, tried 3 times)
- tylenol 1s (over the counter) (dulls the pain with out truly lowering)


CURRENTLY on codeine and nortriptyline

Symptoms

Jaw tires and get really pain after a few bites
Pain in jaw
numb chin
popping/clicking in jaw
Headaches
Tired all the time
Tension even when mouth is slack
jaw feels hot all the time

Could it be?
CRPS
RDS
trigeminal nuralgia
Neuralgia of some sort (nerve was snapped in the operation I had)


Year By Year

Year #
Pain Levels- Out of 10
Comments

Year of the operation (april 2008) Hard to tell was numb 5/6, Not to bad


Year 2009. 5+ Started feeling more pain.

Year 2010. 7+. Second half in crease in pain. Summer 2010 – crowns put in

Year 2011. 7+. Constant pain with a major increase in oct

Year 2012. 8+ too much pain. no longer truely enjoy food

*On Feb 1/12, I had 3 fillings done. The dentist used 4X time the normal (before the op probable 1.5X) injectable freezing and some topical gel. With all that I felt most of it. The freezing stuff only numbed the soft tissue.


Triggers

- ice to cool things (spasms and pain)
- hot (spasms and pain)
- touch (pain)
- chewing (tightness/pain)
- pillows (electrical shock)
- vibration (toothbrushes/bumpy roads)
jfowler12 is offline   Reply With Quote
Unread 05-02-2012, 11:47 AM   #2
JVerive
Junior Member
 
Join Date: Mar 2011
Posts: 22
Default

It does seem reasonable to consider neuralgia as a working diagnosis. Nortriptyline is a common drug for this, but if it is not helping much your doctor should consider other drugs. Other drugs I've been on that helped my neuralgia to various degrees include Tegretol, Lyrica, Keppra, Effexor, Klonopin, and Cymbalta (which I'm currently taking.) Other people have gotten relief from Neurontin, though it did nothing for me other to make me dizzy. Best of luck.

Quote:
Originally Posted by jfowler12 View Post
Foods I Can Eat:

Overcooked Veg, Pasta, Milk (warm), Ensures/Protein Shakes (warm), Tea (warm)
Soup (no meat), Desserts
Eggs, Baked beans, Potatoes, Rice, Pot Pies (veg only), Cereal (soggy with milk), yoghurt

Foods I don’t eat often –hurts too much
Pizza
Bread

Foods I Can NOT eat
Cold Liquids (milk or shakes)
Veg (under cooked veg or raw)
Anything crunchy or sticky
Corn on Cob
Thick things (greek yoghurt)(hard to swallow)
All meat in any form
Anything requiring chewing


I am able to eat at the earliest 12 (noon) and find it easier to eat late in the day. Otherwise my jaw is too sore. I often wake with jaw stuck open and dry. I am usually hungry enough to eat first thing when I wake but choose not to due to the pain in my jaw.(Would prefer all food pureed – have not done this too often)

Things I have tried:

- Exercises (cause pain) (given to me by cousin who is a Physiotherapist)
- Night guard (cause pain)
- Pain meds (naproxen, Advil, Tylenol, etc)(nothing happens)
- Elavil 20mg at night/10mg in the am (helps with sleep not so much with pain)
- Acupuncture (varied results, tried 3 times)
- tylenol 1s (over the counter) (dulls the pain with out truly lowering)


CURRENTLY on codeine and nortriptyline

Symptoms

Jaw tires and get really pain after a few bites
Pain in jaw
numb chin
popping/clicking in jaw
Headaches
Tired all the time
Tension even when mouth is slack
jaw feels hot all the time

Could it be?
CRPS
RDS
trigeminal nuralgia
Neuralgia of some sort (nerve was snapped in the operation I had)


Year By Year

Year #
Pain Levels- Out of 10
Comments

Year of the operation (april 2008) Hard to tell was numb 5/6, Not to bad


Year 2009. 5+ Started feeling more pain.

Year 2010. 7+. Second half in crease in pain. Summer 2010 – crowns put in

Year 2011. 7+. Constant pain with a major increase in oct

Year 2012. 8+ too much pain. no longer truely enjoy food

*On Feb 1/12, I had 3 fillings done. The dentist used 4X time the normal (before the op probable 1.5X) injectable freezing and some topical gel. With all that I felt most of it. The freezing stuff only numbed the soft tissue.


Triggers

- ice to cool things (spasms and pain)
- hot (spasms and pain)
- touch (pain)
- chewing (tightness/pain)
- pillows (electrical shock)
- vibration (toothbrushes/bumpy roads)
JVerive is offline   Reply With Quote
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