Originally Posted by Osband
New to the board and just wanted to check in to say I love what you guys are doing here, and to chip in with my story.
I'm 35, and for the last 4 months, I've been exhibiting symptoms of periperhal neuropathy. I first had symptoms of burning in my left foot for about 2 months, in the third month my right foot joined the party, and in the 4th month, my hands did too.
I'm sure many of you know what I'm talking about, burning that can hit at any time of day, usually more noticable when I'm resting, and can sometimes get intollerably bad. There have been some evenings when it has been so bad that I can't do anything else but dwell on the pain.
I have seen my doctor a number of times, he's sending me for an MRI. Blood tests came back negative for anything significant, save for a minor liver abnormality (which he doesn't think is worth pursuing). He always seems very laid back about the issue, and that doesn't enthuse me.
For a while I noticed that my symptoms were worst after eating, and, after a bit of trial and error, I started on a gluten free diet, and noticed that my symptoms lessened by about 50%. I told the doctor about the diet, but he jusst scoffed at the suggestion really
I've been following advice on this board and got some alpha lipoic acid and I've ordered some Jarrows Methyl B12, I also take omega 3, multivitamin, and vitamin b complex.
I'm mostly posting here because I'm worried, I keep wondering what my next symptom will be (nothing other than burning/shock like symptoms at the moment in hands/feet). I should try to be more positive though, and hope that it can be managed somehow. After all, I've at least managed to lessen the symptoms with the diet.
Hi there, im 38 & have similar syptoms myself! Although, mine have been since Jan. 2012. Started w/ a weird numbness in my left pinky finger, then just spread through the palm of my hand, then both hands, now my feet, legs & arms too! At times the pain is unbarable, since all this began, i literally have no feeling in my hands & feet, & legs too, my walking has got worse, & my daily activities r horrible! i feel at times (NOT REAL) im on Neurontin, along w/ twice a week B-12 shots, that my husband has to give me. Ive had MRI's EMG, & many-many blood tests. All the blood work came back ok, but i do have lesions up & down my spine into my brain stem! I seriously cant handle much more. Now going to a Gastaologist in July b/c my body also has an absorbtion problem, not to be gross, but (EVERY MORNING) i have severe diarehha atleast 2-5 times, & trust me, sometimes i dont make it, its very embarrassing, & a feeling of helplessness! I just hope & pray this can & will get under control & soon too, b/c im not 1 to be so depressed, im usually an upbeat person, & this is really hurting my self esteem, i just feel like this will never get better! I enjoy going shopping & being w/ my family/friends, but lately, who wants to, when u feel so odd? Just was wondering if u or anyone else is going through this starnge & scary problem. TY for reading, Gina*