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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

t.D.C.S. Update Could remission be within my reach and your's too?

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Unread 05-03-2012, 08:33 PM   #281
debbiehub
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Thanks so much for the info! I am now convinced we are seeing the best doc for this. As a real speech pathologist working w s,p stroke, ms etc. I am really curious about schneider s findings on language therapy...will this data ever be available for review?

Irene and I will report back when we get home!


Deb
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Unread 05-07-2012, 06:56 AM   #282
CRPSjames
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Default Now walking wothout the cane

Great to hear about Deb and Irene's appointments with Dr. Fugedy.

I will be meeting with my support group this morning, but I can't wait to share my news.

This weekend I walked without my cane about half of the time. I thought I could walk more without it but I didn't want to push it.

My wife believes that my balance is improving daily. I hope so because if I can lick this balance problem I my be able to return to work!!!!!!

The only thing I have done differently is to take no breaks in my tDCS treatment. For now I just keep the the schedule of twice a day for twenty minutes each treatment. The most recent research suggests that longer periods of treatment is more effective. Since I am still improving I will continue.

Deb and Irene, please share anything you can about your appointment. I hope it isn't long before you are reporting the same kind of progress.

I am going to stroll into my meeting without my cane! I can't wait!

Best to all!
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Unread 05-07-2012, 07:44 AM   #283
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This is really fantastic news! I am so happy for you. Bet you can't wait to see the looks on everyone's faces when you walk in to that meeting huh?
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Unread 05-07-2012, 03:07 PM   #284
debbiehub
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Just wanted to let you know we had a great visit with dr fugedy. He spent about three hours with us and we did a treatment. I had trouble with burning on my scalp so I will try at level 1 for 40 min. I just hope this is not a persistent problem. So my first tx will be tonite bc I wanted to let my scalp heal. Fugedy is very nice and smart. He is constantly getting updates on new tx protocols. So...I will keep u all updated on progress!!

Debbie
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Unread 05-07-2012, 03:28 PM   #285
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Originally Posted by debbiehub View Post
Just wanted to let you know we had a great visit with dr fugedy. He spent about three hours with us and we did a treatment. I had trouble with burning on my scalp so I will try at level 1 for 40 min. I just hope this is not a persistent problem. So my first tx will be tonite bc I wanted to let my scalp heal. Fugedy is very nice and smart. He is constantly getting updates on new tx protocols. So...I will keep u all updated on progress!!

Debbie
I'm so glad you had a good visit. I REALLY hope that your treatments go well. Sometimes the burning on the scalp could mean you need more saline on the sponge...so maybe that would be something to try. Good luck!!
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Unread 05-07-2012, 03:40 PM   #286
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Quote:
Originally Posted by debbiehub View Post
Just wanted to let you know we had a great visit with dr fugedy. He spent about three hours with us and we did a treatment. I had trouble with burning on my scalp so I will try at level 1 for 40 min. I just hope this is not a persistent problem. So my first tx will be tonite bc I wanted to let my scalp heal. Fugedy is very nice and smart. He is constantly getting updates on new tx protocols. So...I will keep u all updated on progress!!

Debbie
Hi Debbie,

Thank you very much your input relating to your visit with Doc Fugedy.
We are sorting out the final details before we re-set the appointment
with Doctor Fugedy. One had been set for April but about a month
before family emergencies arose and we had to postphone. I am anxious
for my daughter to get to Atlanta. I have spoken with Doc Fugedy several
times and each time I end our conversation I feel more impressed and
more confident in his expertise.

Please keep us posted. we your friends are rooting for you and will send
you good thoughts and you will be in our prayers,

Joydee
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Unread 05-07-2012, 07:07 PM   #287
debbiehub
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Did my first tx tonite,,,no bad stinging,,,,yeah

Deb
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Unread 05-07-2012, 07:36 PM   #288
ballerina
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Default Pain Glorious Pain

Yes I am in pain and yes the pain is glorious.

For the past four days my pain level has been down to a level two. (it goes up and down but the lowest is two)

The last time I had a level two pain was prior to CRPS.

I do have miserable muscle pain and I am loving it!!!!!!!!!!!!!!!!!!The pain is from muscles that I have not used in years. For the past several days I have been joyously doing mundane activities like dishes, laundry, dusting, picking up stray sticks in the yard, etc. Waking up those muscles has NOT set off a flare, just soreness from long term lack of use.

This is what I have done recently. Gone back on LDN 4.5 mg. to combat inflammation, gone back to melatonin, upped it to 2 mg. for sleep issues, gone back on glucosomine for inflammation. I have also gone back on 5 mg of Adderall twice a day for pain and cognitive issues. I am also doing two forty minute sessions of tDCS twice a day. Additionally I am sticking ruthlessly to the home PT plan I devised which consists of twenty minutes on and twenty minutes off of some form of exercise all day long. I am also doing mirror therapy three times a day.

Basically I am spending time on controlling the inflammatory response of my body to CRPS an whatever I can do to address brain reorganization.

My husband and I have been non stop smiling and laughing. Today I went out into the yard and cut some roses for the kitchen table. (I am still a little uncoordinated and I dropped them on the way in) When my husband walked in the door I surprised him with roses from the garden and he surprised me with roses from the florist. I hit the jackpot!!!!!!!!!!!!!

I could not be happier for CRPSJAMES, Deb, Irene and Catra and others who are making progress but can't share for fear of repercussions from doctors.

I have been lucky that CRPS did not cause depression but I never expected to be overjoyed while having CRPS!!!!

I hope my joy is infectious to all!!! Better days are ahead for all of us!
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Unread 05-08-2012, 06:41 AM   #289
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Quote:
Originally Posted by ballerina View Post
Yes I am in pain and yes the pain is glorious.

For the past four days my pain level has been down to a level two. (it goes up and down but the lowest is two)

The last time I had a level two pain was prior to CRPS.

I do have miserable muscle pain and I am loving it!!!!!!!!!!!!!!!!!!The pain is from muscles that I have not used in years. For the past several days I have been joyously doing mundane activities like dishes, laundry, dusting, picking up stray sticks in the yard, etc. Waking up those muscles has NOT set off a flare, just soreness from long term lack of use.

This is what I have done recently. Gone back on LDN 4.5 mg. to combat inflammation, gone back to melatonin, upped it to 2 mg. for sleep issues, gone back on glucosomine for inflammation. I have also gone back on 5 mg of Adderall twice a day for pain and cognitive issues. I am also doing two forty minute sessions of tDCS twice a day. Additionally I am sticking ruthlessly to the home PT plan I devised which consists of twenty minutes on and twenty minutes off of some form of exercise all day long. I am also doing mirror therapy three times a day.

Basically I am spending time on controlling the inflammatory response of my body to CRPS an whatever I can do to address brain reorganization.

My husband and I have been non stop smiling and laughing. Today I went out into the yard and cut some roses for the kitchen table. (I am still a little uncoordinated and I dropped them on the way in) When my husband walked in the door I surprised him with roses from the garden and he surprised me with roses from the florist. I hit the jackpot!!!!!!!!!!!!!

I could not be happier for CRPSJAMES, Deb, Irene and Catra and others who are making progress but can't share for fear of repercussions from doctors.

I have been lucky that CRPS did not cause depression but I never expected to be overjoyed while having CRPS!!!!

I hope my joy is infectious to all!!! Better days are ahead for all of us!
Those mundane activities have been joyous for me as well so I can understand how you feel and I am so happy for you. I always hated doing the dishes, laundry, cooking, yard work, and grocery shopping. Now I am SO happy and thilled to do all those things that it's hard to put words to it. Those things have really kept me going while I have been fighting to go back to work. Just goes to show that you really don't appreciate how lucky you are to be able to do all those mundane activities until you can't do them anymore.
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Unread 05-08-2012, 02:09 PM   #290
Rakesh
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Hi All,

I've purchased the equipment pieces (phoresor, banana to pin..etc) some time ago but have not had a chance to get it started. This may be a sill request but can somebody help me?

So I have the Phoresor unit, 2 3x3 sponge electrodes, and only one(yes, I have the other one on order) pin to banana (or banana to pin adapter?) and I'm getting an electrode reject error.

Please help, I'm not really that good when it comes to technology (I'm an accountant!).

Maybe the electrode reject is there because I need another adapter to connect to the electrode? Could anyone think of other reasons maybe (except the fact that I'm not mechanically inclinded:-)

Thanks,
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