I have been reading discussions on this site and am glad to know that i am not alone in the frustration of not knowing what is wrong. I started feeling different about 2 1/2 years ago. After various doctors, tests and a feeling of being a Hypochondriac, I finally made an appointment with a Neuro. They did an EMG and single fiber study and both came back abnormal. FINALLY, someone knows something is wrong, what a relief! Still waiting for the results from my AChr and MUSK. They are thinking MG but I am also having (been since Oct 2011) muscle cramps and twitching everyday different areas of my body. Mestinon does not seem to do much for me, no matter what the dose. I cannot find anything that says MG causes twitching and/or cramping but I have seen that ALS does. It seems also that my muscle fatigue is continuing to get worse. When I called the Neuro to get in sooner than 1 month the answer I got was, if its bad, go to the ER. What is the ER going to do for me?? Refer me back to Neuro. All I want is a sure DX and start treatment. I am still working full time and it is getting harder for me to perform my job duties with out becoming very short of breath and fatigued.
Dont they realize we need results so we can start planning our future ?
sorry i am venting on here but it is difficult to talk to family and friends because they do not understand. I have caught a URI this week and noticed that my shortness of breath is worse than normal. Having a hard time getting air out after just normal activity. As long as I sit still and rest im ok, but have to work today and tomorrow.
thanks for listening to me vent. Have a great day yall'