When I moved out of LA, I dropped both PT and chiro to see how long I could go. I also dropped the diazepam at one point. By 3 months I was in really bad shape with TOS symptoms, dizziness and even vertigo. One day it got bad enough that I could not walk and wasn't sure if I'd pass out. I went to the ER and got checked out, but all tests were negative and I was discharged with some anti-dizziness and anti-nausea meds (vertigo => hurl).
I re-entered PT with Art Ando which improved me substantially in pretty much the same way I had improved with Joyce Wilkinson: manual therapy to relieve muscle spasms, mobilize joints and align the body. Dizziness came way down. TOS symptoms improved over all, but as you know, they can vary day to day.
But I kept reverting. I mentioned this to Ando and he said that was called "recidivism" in PT--when a patient is treatable, but the problem returns. He said, "At least your not recalcitrant." That's when you're untreatable.
Btw I'm a combo case of TOS+TMJD.
I thought more about this and concluded the most fundamental problem was chronic muscle tension. I clench my neck, jaw and intercostals in response to even small stressors. I did some more research on Amazon looking at various books, paying special attention to the people's specific experiences as relayed through their reviews. Consequently, I came across this gem:
The Quieting Reflex by Charles Stroebel
I'm only 3 weeks into this, but it has substantially
reduced muscle tension and TMJD symptoms. Even my TOS has improved. This has been a breakthrough/milestone for me.
I also like "The Intelligent Body: TMJ Program by Frank Wildman" which is a Feldenkrais audio.
Getting back to Ando, he is 120 miles round trip for me, so I'm not currently going. I may look for manual therapy down here in Temecula or Murrieta. So my current regime is all home care:
-- stretches, PT and yoga
-- exercises, PT and regular
-- quieting reflex (QR)
-- some diazepam, but less than half what I used before QR
-- some feldenkrais audio
Life is not perfect, but life is much better.