On Sunday night, May 27th is when the problems started. I was just sitting on my sofa when I started feeling bad all of a sudden. I started to feel nauseous and lightheaded. I ended up falling down in my bathroom and seizing on the floor. I was aware during the whole episode but I was not able to speak or move. When my fiance found me, I still couldn't talk or walk but had stopped seizing. We went to the ER and had about 6 more seizures before the night was over.
The doctor who saw me doesn't think it was a seizure simply because I was awake and didn't lose control of my bowels. I'm not kidding, that is what she said. They had given me Fosphenytoin through the IV but I broke out in hives. So I ended up on Dilantin which hasn't given me any adverse reactions so far, but does make me a little groggy. They took a CT scan and an ECG but said they didn't find anything abnormal.
I'm currently in the process of finding a neurologist to see what's going on. I have been ordered not to drive until cleared by a doctor. In the meantime, I have been researching seizures and I think I'm having simple partial seizures. The descriptions fit perfectly with what I've experienced. I read its a good idea to keep a journal of each episode, so I started one. It's really frustrating to not know what's going on and have the doctor's treat me like I'm faking it.
I once had some episodes about 5 years ago. I didn't know they were seizures until now and hadn't had anymore until Sunday. I had consulted my primary physician and she said it was nothing. I'm looking for a new primary care doctor as I don't like her for a number of reasons.
So far, I have been awake through all the ones that I know I've had. I had another one last night and I think I might have had one in my sleep. My dog, who is extremely docile, pounced on my chest to wake me up and looked me straight in the eyes. Once he was satisfied I was awake, he laid back down and went to sleep. It was so weird and unlike him to do something like that.
I'm just really confused...