Originally Posted by norahs
Until I was diagnosed I had never heard of "erthromelalgia" and because it is pretty rare there are few with it. Although I wouldn't wish this on anyone it would mean a lot to me to have someone to talk to that shares my situation and pain.
I also have PN, Raynaud's which my doctor believes are a result of the EM. There are other sites with EM sufferers but I like this site so much just thought I would check with you all.
I am new here, and I know this is an old post but I thought I'd share my two cents, anyway.
I was diagnosed with EM approximately 2 months ago. I have it in my upper body, which is even more rare. Face, neck, ears, etc.