Anyone out there have EM?

[norahs]

Until I was diagnosed I had never heard of "erthromelalgia" and because it is pretty rare there are few with it. Although I wouldn't wish this on anyone it would mean a lot to me to have someone to talk to that shares my situation and pain.

I also have PN, Raynaud's which my doctor believes are a result of the EM. There are other sites with EM sufferers but I like this site so much just thought I would check with you all.

Thank you.

[rose_thorn98]

Yes, I have a mild case of EM. It started 1 yr. 4 months ago. There is a very good active EM group in the yahoo groups. Also on Facebook. I also have Raynauds, and all over burning neuropathic pain (without flushing). So far I only have the EM diagnosis. They cannot diagnose or tell me why I have the all over body burning pain.

[lolah]

Originally Posted by norahs

Until I was diagnosed I had never heard of "erthromelalgia" and because it is pretty rare there are few with it. Although I wouldn't wish this on anyone it would mean a lot to me to have someone to talk to that shares my situation and pain.

I also have PN, Raynaud's which my doctor believes are a result of the EM. There are other sites with EM sufferers but I like this site so much just thought I would check with you all.

Thank you.

I am new here, and I know this is an old post but I thought I'd share my two cents, anyway. I was diagnosed with EM approximately 2 months ago. I have it in my upper body, which is even more rare. Face, neck, ears, etc.