Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Thoracic Outlet Syndrome

Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

List of Q's For Doc. Add to it. Going Next week!

Reply
 
Thread Tools Display Modes
Old 06-12-2012, 05:20 PM   #1
heybro
Member
 
heybro's Avatar
 
Join Date: May 2012
Location: Minneapolis
Posts: 175
Default List of Q's For Doc. Add to it. Going Next week!

I am going to another vascular surgeon next week.

Here are my questions so far. Do you have any to list?

1. How sure are we it is thoracic outlet?
2. What else could it be?
3. Explain the results of my duplex ultrasound of my subclavian arteries and veins? How bad is the blood flow? Where is it restricted specifically? What else can cause that? How does it compare to normal? to very very bad?
4. Can you tell if it is the nerve also that is being restricted?
5. I get numb pinkies and pressure/pain on the thumb side. How do the symptoms relate to what you think is going on?
6. Do you just want to remove the ribs?
7. What about removing scarring adhesions or scalenes?
8. What are the risks of surgery?
9. What side would you do first?
10. How many have you done? Success rate?
heybro is offline   Reply With Quote
Old 06-12-2012, 05:36 PM   #2
nospam
Member
 
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 731
Default

Surgical method: supraclavicular or transaxillary?

If rib resection then full scalenectomy or partial (scalenotomy)?
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With Quote
Old 06-12-2012, 07:14 PM   #3
ladylaura418
Member
 
Join Date: Aug 2011
Location: Boston, MA
Posts: 118
Default

I would ask about his patients' usual recovery time and the average length of stay in the hospital.

If you have bilateral TOS, I would inquire about the length of time he suggests between the two surgeries. Due to various factors, I opted to have mine done 10 weeks apart. My surgeon said 6 weeks was the shortest he has done, and he recommends waiting longer than that whenever possible.
ladylaura418 is offline   Reply With Quote
Old 06-12-2012, 11:53 PM   #4
heybro
Member
 
heybro's Avatar
 
Join Date: May 2012
Location: Minneapolis
Posts: 175
Default

Sweet thanks!

So supraclavicular is reparing blood vessels and transaxillary is removing the ribs, which can be full scalenectomy (the whole rib) or partial (just some of the rib)?

Full is better because the knub of the rib can later rub, right?

am I following right?
heybro is offline   Reply With Quote
Old 06-13-2012, 02:07 PM   #5
brmr19
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 270
Default

full is better. I had my first done transaxillary and still having problems, which I am told the knub is rubbing. I have surgery scheduled for July18 this time supraclavicular.
brmr19 is offline   Reply With Quote
Old 06-13-2012, 07:33 PM   #6
parbie
Member
 
Join Date: May 2012
Location: San Francisco, CA
Posts: 122
Default

Quote:
Originally Posted by heybro View Post
Sweet thanks!

So supraclavicular is reparing blood vessels and transaxillary is removing the ribs, which can be full scalenectomy (the whole rib) or partial (just some of the rib)?

Full is better because the knub of the rib can later rub, right?

am I following right?
The surgeon can remove the ribs both ways, but some prefer one way vs the other. A surgeon I saw today preferred supraclavicular because transaxillary you can't reach up as far without stretching the nerves which leaves more room for nerve damage but that is because he wants to remove my cervical rib. Scalenectomy means removing the scalene muscles in addition to removing the rib. You can either have full (all of it) or partial (some of the muscle) removed. And from the research I've done, it seems full rib removal is the better option to reduce your chance of recurrence.
parbie is offline   Reply With Quote
Old 06-13-2012, 07:55 PM   #7
nospam
Member
 
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 731
Default

Quote:
Originally Posted by heybro View Post
Sweet thanks!

So supraclavicular is reparing blood vessels and transaxillary is removing the ribs, which can be full scalenectomy (the whole rib) or partial (just some of the rib)?

Full is better because the knub of the rib can later rub, right?

am I following right?
These links may help you follow better:

http://morphopedics.wikidot.com/thor...-syndrome#toc9
http://surgery.wustl.edu/TOS_Patients_Neurogenic.aspx

Partial rib resections are not desirable regardless of the approach as they have been shown to increase the chance of recurrence due to scarring/adhesions. So make sure your surgeon is planning to remove the entire rib from sternum to spine.

Once you have chosen a surgeon, it is best not to get hung up on transaxillary vs supraclavicular approach as there are pros and cons to each and each surgeon has a preference based on experience. It is fine to ask why they prefer a particular approach and specifically what the plan for your surgery is.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With Quote
Old 06-13-2012, 10:11 PM   #8
heybro
Member
 
heybro's Avatar
 
Join Date: May 2012
Location: Minneapolis
Posts: 175
Default

I just found out he thinks I have Neurogenic compression of the Brachial plexus and he wants to do decompression of the thoracic outlet and decompress the area where the vein gets pinched occasionally.
heybro is offline   Reply With Quote
Old 07-09-2012, 07:41 AM   #9
Iris
Member
 
Join Date: Jul 2012
Posts: 103
Default this is a good thread- any more questions to ask?

Does anyone have anymore questions to add? I am going to see a new surgeon as well. Thanks! (I have arterial TOS).
Quote:
Originally Posted by heybro View Post
I am going to another vascular surgeon next week.

Here are my questions so far. Do you have any to list?

1. How sure are we it is thoracic outlet?
2. What else could it be?
3. Explain the results of my duplex ultrasound of my subclavian arteries and veins? How bad is the blood flow? Where is it restricted specifically? What else can cause that? How does it compare to normal? to very very bad?
4. Can you tell if it is the nerve also that is being restricted?
5. I get numb pinkies and pressure/pain on the thumb side. How do the symptoms relate to what you think is going on?
6. Do you just want to remove the ribs?
7. What about removing scarring adhesions or scalenes?
8. What are the risks of surgery?
9. What side would you do first?
10. How many have you done? Success rate?
Iris is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
A week ago the Hospice nurse gave Dad 1 week Twinkletoes Sanctuary for Spiritual Support 92 02-10-2009 01:30 AM
New to list waggydog Thoracic Outlet Syndrome 13 09-30-2008 08:45 AM
Wish List mom23angels The Stumble Inn 39 06-03-2008 10:11 PM
To Do / Not To Do LIST Friend2U Multiple Sclerosis 32 04-30-2008 10:02 PM


All times are GMT -5. The time now is 04:05 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.


All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy
NeuroTalk Archives