Newly diagnosed RSD

Sandy Shores · 06-14-2012, 09:06 PM

Hi. I'm a bit shy...this is new for me to share my news as it was just confirmed today thst I have RSD. Needless to say I'm scared, sad, and looking for answers. My doctor was very blunt when he told me and not at all reassuring. I'm hoping to find some support but know I won't get it if I don't ask.

So does anyone have a word of advice for a newcomer? Are there resources available to find specialists? Perhaps a advocacy group to help guide one through the quagmire of websites and articles? I was told there are no doctors in my area that treatyou RSD and that my insurance will likely not approve visits outside my county.

Hoping for some hope...
Thank you.

LIT LOVE · 06-14-2012, 10:07 PM

I'm a big fan of Dr. Hooshmand's website, http://www.rsdinfo.com/ but some of the info is outdated since he retired several years ago, there are also several other great sites to be found in the stickies on the RSD forum. And by simply searching through old threads here at NT, could keep you busy for a long while.

Don't use ice! Ask questions when in doubt. Don't be shy.

Good luck.

Darlene · 06-15-2012, 01:56 AM

Sandy,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Check into the following forum for assistance:

Reflex Sympathetic Dystrophy:
http://neurotalk.psychcentral.com/forum21.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene