so i've been thinking...

[sunshine_13]

I really want to start a support group in my town.

I realized that most of us are fighting this alone, and that loneliness and frustration is affecting our MG.
(this site & all of you have made a gigantic difference in the way i view my life and my fight with MG.) so imagine what two people who are face to face can do for each other and others in the community.
i can't be the only one in this town with MG.

So my question is... does anyone know how to start one? what needs to be done?


I feel like i have to make a difference.

[Shari_W]

That's wonderful that you want to start a Support Group sunshine! Have you checked the National Myasthenia Gravis Foundation to see if there's already a support group in your city? There is a MG support group in my city and several other cities in my state. I found out about them several years ago through the National Myasthenia Gravis Foundation.

I would go to the National Myasthenia Gravis Foundation website to see if there is a Florida MG Chapter that you could contact to see if a support group is already set up. If not, then maybe they can give you some information as to how to go about setting one up.

Good Luck

***EDIT*** I went to the site and see that they have a MG chapter in Greater FL. The link is below.Click on that and it lists the different Support Groups in FL. I hope you find one close to you!http://www.myasthenia.org/Livingwith...AChapters.aspx

[sunshine_13]

Shari_W:
Thank you for the information. It seems like the greater Florida chapter is in seminole Fl, about 2 and a half hours from where i live. That is too long of a drive for me.
I will definetely try to contact them to see how i can maybe help create one here in fort myers!

Thank you.







[quote=Shari_W;891073]That's wonderful that you want to start a Support Group sunshine! Have you checked the National Myasthenia Gravis Foundation to see if there's already a support group in your city? There is a MG support group in my city and several other cities in my state. I found out about them several years ago through the National Myasthenia Gravis Foundation.

I would go to the National Myasthenia Gravis Foundation website to see if there is a Florida MG Chapter that you could contact to see if a support group is already set up. If not, then maybe they can give you some information as to how to go about setting one up.

Good Luck

***EDIT*** I went to the site and see that they have a MG chapter in Greater FL. The link is below.Click on that and it lists the different Support Groups in FL. I hope you find one close to you

[Shari_W]

Sunshine,
They have one in FT Myers! After you click on Greater Fl then you need to look to the right and click on "Support Groups". They have several listed and I see one for FT. Myers. I copied the info for you below:

Fort Myers Support Group


Keep an eye out for our schedule.

All meetings are held at 7:00 p.m. at
Lee Memorial Hospital
2776 Cleveland Avenue (US 41)
Fort Myers, Florida, in MED 3
Conference Room

Contact Marie Ronnlof at
727.596.1491 or
1.877.596.1491 (toll free)
tronnlof@verizon.net or
Jerry Melaugh at
239.433.3277

Hope you can find out more by contacting the person above