Interesting and Timely Doctor's Appointment
I had a PCP doctor's appointment last night to check out a couple of suspicious skin tags that have appeared in the last 6 months. He didn't like the look of any of them and removed a total of "13" using Lidocain and cutting them off. He's sending them to pathology for biopsy just to make sure nothing else is going on. He always takes the time to discuss, "what else is going on," with both me and my wife. Joyce now attends all doctor's appointments with me to provide her point of view and observations insuring we don't forget anything. We were with him from 8:00 PM to 9:15 PM as his last patient for the day.
We talked in-depth regarding the "mini-comas" and he confirmed this is all part of the progression of the degeneration of the cerebellum which seems to becoming more aggressive. When your doctor of 6 years says he can tell things are not going well just by the way I look, it's never a good sign. Joyce has now been instructed to check my vitals when I'm in one of these mini-comas and to closely watch my breathing to insure it is not becoming labored or gradually reducing from normal. You know the situation is becoming more dire when your doctor starts talking about having a DNR (Do Not Resuscitate) on file and uses the word "hospice" tempering it by, "but that is down the road." I get the feeling my road is coming to that sign you see, "End of State Maintained Highway." I looked in the mirror once home and he used those fabric round band-aides on each removal site. I laughed because I looked like one of those firing range silhouette targets shot by someone who can't aim very well. I think I will check into getting one of those monitors you wear which provides pulse, heart and respiratory rates as well and BP and a pulse-ox, so Joyce just has to look at it for her information. It will make it easier for her to have the info and log it.
The good news of my disease vs. you' all's MS treatments, I don't have to take any shots like when I was taking Avonex for a year and-a-half. I know this is probably way more information than you want, but for those who visit the forum, lurk and just read, it might hit a familiar note causing them to look into alternatives while realizing we don't just lay down and take it.
So there's my super current update fresh from last night's doctor's appointment. Oh! And no, none of this is going to prevent us from going on our cruise in February. For us it's all about the journey and the ship as our destination.
Craig ~ NeuroNixed
Living Life On My Terms
No Excuses No Regrets
Richmond, VA USA