NeuroNixed Craig: Day by Day

[SallyC]

Well don't ypu look spiffy!!! I love your beautiful wife's dress...excellent!!!

[NeuroNixed Craig]

I had a PCP doctor's appointment last night to check out a couple of suspicious skin tags that have appeared in the last 6 months. He didn't like the look of any of them and removed a total of "13" using Lidocain and cutting them off. He's sending them to pathology for biopsy just to make sure nothing else is going on. He always takes the time to discuss, "what else is going on," with both me and my wife. Joyce now attends all doctor's appointments with me to provide her point of view and observations insuring we don't forget anything. We were with him from 8:00 PM to 9:15 PM as his last patient for the day.

We talked in-depth regarding the "mini-comas" and he confirmed this is all part of the progression of the degeneration of the cerebellum which seems to becoming more aggressive. When your doctor of 6 years says he can tell things are not going well just by the way I look, it's never a good sign. Joyce has now been instructed to check my vitals when I'm in one of these mini-comas and to closely watch my breathing to insure it is not becoming labored or gradually reducing from normal. You know the situation is becoming more dire when your doctor starts talking about having a DNR (Do Not Resuscitate) on file and uses the word "hospice" tempering it by, "but that is down the road." I get the feeling my road is coming to that sign you see, "End of State Maintained Highway." I looked in the mirror once home and he used those fabric round band-aides on each removal site. I laughed because I looked like one of those firing range silhouette targets shot by someone who can't aim very well. I think I will check into getting one of those monitors you wear which provides pulse, heart and respiratory rates as well and BP and a pulse-ox, so Joyce just has to look at it for her information. It will make it easier for her to have the info and log it.

The good news of my disease vs. you' all's MS treatments, I don't have to take any shots like when I was taking Avonex for a year and-a-half. I know this is probably way more information than you want, but for those who visit the forum, lurk and just read, it might hit a familiar note causing them to look into alternatives while realizing we don't just lay down and take it.

So there's my super current update fresh from last night's doctor's appointment. Oh! And no, none of this is going to prevent us from going on our cruise in February. For us it's all about the journey and the ship as our destination.

[Dejibo]

They have auto blood pressure machines, so she can just wrap it around your wrist and let her fly! it will tell her your heart rate and your BP. There are also finger tip monitors pretty cheap now that show your O2 level. I found mine on amazon for $25. the BP cuff for the wrist for another $25. She would have to bother you very little and get alot of info just from those two actions.

Please know that you have impacted my life in so many ways. I have appreciated your sense of humor, your drive to want more, your humor in the face of a cruel disease, and your love and support to those of us that cant find the right words when we need them.

im here if you wanna talk.

[NeuroNixed Craig]

Originally Posted by Dejibo

They have auto blood pressure machines, so she can just wrap it around your wrist and let her fly! it will tell her your heart rate and your BP. There are also finger tip monitors pretty cheap now that show your O2 level. I found mine on amazon for $25. the BP cuff for the wrist for another $25. She would have to bother you very little and get alot of info just from those two actions.

Please know that you have impacted my life in so many ways. I have appreciated your sense of humor, your drive to want more, your humor in the face of a cruel disease, and your love and support to those of us that cant find the right words when we need them.

im here if you wanna talk.

Yes, Dej. I brought this up to Joyce this morning after doing research on what DME is available and how inexpensive it is from Amazon.com. She smiled and said she didn't believe it was that much of a problem for her to see if I was breathing, count my breaths and take my pulse. A wifely way of telling me, "Don't worry bout it! I've got it covered."

[Sparky10]

Craig, you give that Lady a big Neurotalk hug!