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arachnoid cysts

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Old 08-11-2012, 11:12 PM   #1
Oneyakpie
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Hi,i was diagnosed with an arachnoid cyst ( 4,6cm X 4.7 cm) in December 2010,well i was told ive had it since infancy , i had a knock on the head in 2010 which had me in the er ,after 6 months of nightmare migraines ,still have the migraines ,the temper flare ,losing my balance ,numbness on left side ,nasuea,cant settle ,have to be on the go constantly,dont sleep much ,basicly an a hole tbh ,ive no insurance and cant get medicare as im not a u.s, citizen though ive livced here 12 yr now ,cant get medicaid as ive not paid enough quarters in taxes,well i went home to scotland,they wouldnt help me , does anyone know anywhere i can get help ,im close to the end of my tether ,i hate the person ive become due to this cyst ,its showing through my head<its located between my brain and spinal cord in my cellebrum , i have the CT Scan,does anyone have any advice for me please ? would be appreciated very much ,thanks
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Old 08-11-2012, 11:38 PM   #2
Mark in Idaho
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Oneyakpie,

Welcome to NeuroTalk. Sorry to hear of your condition and struggles.

Other than waiting until you have a life threatening emergency and are admitted to the hospital through an ER, maybe you can find a teaching hospital that will consider your case.

Do you have any way you can get a job that has insurance? Or, can you get a catastrophic insurance policy with a high deductible?

My wife has a hospital only policy with a $5000 deductible that costs $200 per month. It would cover her for something like yours. It may require that you get the coverage and then wait a bit before they cover it.

What are you doing to take care of yourself?

At the worst, you could get arrested and sentenced to jail and get taken care of as an inmate. Your anger issues would be cause to react poorly with a cop. Slug a cop and go to jail, then to the hospital.

Extreme way to get help but as a last resort?????
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58 years old, retired due to disability, married 33 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after last concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate and short term visual and auditory memory problems, slowed processing speed, visual and auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and successfully stopped all paroxetine after 3 months of tapering down

"Be Still and Know That I am God" Psalm 46:10
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Old 08-12-2012, 03:29 PM   #3
Scott in Fenton
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Oneyakpie,

You might try here: http://health.usf.edu/medicine/ortho...sion/index.htm they have a concussion clinic, though I couldn't find any information on payment types. It's worth a phone call. You should also try the other universities in FLA. I don't know if you have any universities that sponsor hospitals, but if any of them do then that is a teaching medical university and they are the likeliest place to start.

After exhausting academia, I would look to the State...but that might be tricky if you are not a citizen. I know in my state there is a state run program for brain injuries that would have been free for me, but the wait list is a year long and I was able to use my company insurance to get help from a teaching university.

Keep looking, or ask a friend or relative to help you research places where you can get help. Government and Academia are the two primary places to look.

Also, doesn't Scotland have a National Health Service sort of thing like the U.K.? I'm surprised you couldn't get help at home.

Best of luck and keep dropping by here, if you read enough you'll find great information to manage your PCS, if not the cyst.
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