So, you've had RSD full body for about 50 days?
[My first response to your having it for 50 days is that I am sure it seems like so much longer. One seems to lose track of time, days, months and then even years. It (RSD) determines so much in one's life and you learn to go places and do things with you have a let up, if only just a little.
Take advantage to get your mind off the pain, think about other things, if only for a few moments. The mind has to get some rest. It seems to be over stressed constantly, especially in the first months of RSD. I have suffered with it for 2 1/2 years and believe me, sometimes I didn't even want to talk to anybody or have a phone conversation with the best of friends. The first thing they ask is, "How are you?" And once you begin telling them, the disease flares up and you relieve the last horrible pain, by describing it.
Take your time, don't rush yourself to be what others expect you to be. For me, I needed some solitude, but I welcomed cards or emails from those who were thinking about me.
I was not a candidate for blocks or Lyrica, or any of the other usual medications because of my drug allergies. I was barely able to walk and developed severe hypertension also. I read a book that was about a treatment machine called VECTTOR by a Dr. in Texas and was thinking about going there for treatment. Not long after that, my husband was talking to someone about taking me to that clinic in Texas and that person knew someone else who'd gone there who had M.S. and that man came back able to drive again and run his business. I own a business myself, so that sounded good to me. I went and it's been 1 1/2 years now that I've used this VECTTOR machine and I believe it has helped me. I am not cured, but it helps with the pain, since I couldn't take any pain medicine.
I was wondering if you have any problems with high blood pressure? I developed very high blood pressure about a month after getting RSD from a shoulder injury. I am trying to find out how many persons with RSD develop high blood pressure too. Even though I take tons of medicine for the BP problem, it continures to occur in the 200's at times.
It takes a lot of patience to live with RSD and that is why I chose that word for my user name.
QUOTE=getwellsoonerorlate;905607]I have had full body CRPS for about 50 days and been on Cymbalta and Lyrica for 28 days roughly with stellate ganglion blocks and 3 days of Ketamine thus far.
I was wondering if people with full body would walk me through how their symptoms progressed over time so I can gauge my own body's feelings with what is typical or normal here... I am unsure sometimes of whether I am doing well or poorly in terms of where my pain is now and how I'm feeling.[/quote]