Go Back   NeuroTalk Support Groups > Health & Related Topics > General Health Conditions & Rare Disorders

General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.

Where to go now?

Reply
 
Thread Tools Display Modes
Old 08-25-2012, 08:16 PM   #1
tiny618
Visitor
 
Join Date: Aug 2012
Posts: 1
Default Where to go now?

Hi Everyone. I have a chiari decompression 9 years ago now. I still have syringomyelia of course. Some years are better than others but this year seem to be pretty bad. I am trying to find a new doctor in the Philadelphia area since my neurosurgeon at the moment seems to have washed his hands of me (since I am not willing to be cut). Headaches are becoming more common again, tingling/numbness in my right arm and leg, and spine pain. Maybe someone out there can help me this spine pain. has been going on for some years now but it is causing the rest of my back to hurt as well. It feels as if someone in stabbing me, burning, basically just constant pain from the lower neck to wear my bra sits. I have be tolerating all of this for as long as I can and really just need help at this point. Amy similar pain out there? Or know of any doctors with knowledge in these diseases in the Philadelphia area? ( I am actually in South Jersey) Pretty annoyed at this point and just want some relief.
tiny618 is offline   Reply With Quote
Old 08-26-2012, 04:27 PM   #2
EdinNJ
New Member
 
Join Date: Nov 2006
Location: New Jersey
Posts: 10
Default NJ Chiari Support Group?

Dear Tiny,

Would it possibly be helpful for you to be in contact with the "Southern Ocean Jersey Chiari Support Group," if you haven't already been in contact with Christine and others there, to possibly compare notes on NJ and Philly docs?

Just an idea.

- Ed

New Jersery Self-Help Group Clearinghouse
EdinNJ is offline   Reply With Quote
Old 08-30-2012, 08:42 AM   #3
razzle51
Member
 
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 791
My Mood:
Default

Dr Ghassan K Bejjani
Greater Pittsburgh Neurosurgical Associates-UPMC
Aiken Professional building, Suite 311
532 South Aiken Avenue
Pittsburgh PA, 15232
Phone: 412-623-6910
Fax: 412-623-6911
http://www.neurosurgery-web.com/

Dr. Joseph Maroon
UPMC Presbyterian, 5C
200 Lothrop Street
Pittsburgh, PA 15213
412-647-3604
1-888-234-4375
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With Quote
Old 08-31-2012, 06:22 PM   #4
lizz4m
Junior Member
 
Join Date: Aug 2012
Posts: 16
Default help

Thank you for the address and information
lizz4m is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -5. The time now is 06:06 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.


All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy
NeuroTalk Archives