Originally Posted by dcb123
Dystonia is a general term used for a unknown movement disorder.
You have to find a neurologist that specializes in Movement Disorders.
There are several disorders that be described in your Husbands case.
If you live a large metropolitan area there should be one that fits your needs.
Also if he hasn't had a MRI done he should have one asap. But a qualified Neurologist would know this.
I live in Canada and the University of Manitoba (School of Medicine) have a specialized a clinic only for Body Movement Disorders.
I have Parkinsons Disease and they zeroed in to it pretty fast.
I am not doing any better but at least I know what my falling and jerking was about.
Good luck to you both. Look after each other.
Uncertain as to whether you were sending your last message to me?
My best response would be to go on your computer and do a search for.
Neurologist specializing body movement disorders.
Also add the name of the largest city closest to where you live after you type disorders.
The type and quality of the Neurologist you are seeking will be connected to a large Hospital, Clinic or some other medical facility or University etc.
Remember, Neurologists in this field of medicine are rare and if you find one make contact immediately. Most won't deal with you directly. They would prefer to have you referred to them by another Doctor.
Most probably your family Doctor.
When you locate a Neurologist or a Neurological facility you might try to contact them directly. Or you can give the name and address to your Family Doctor for referral.
Whichever Neurologist you seen before is a discredit to his profession.
After I was referred by my Family Doctor I was put on a waiting list and I had to wait one year to see a specialist.!
I live in a city of close to 700,000 persons and there are only three Neurologists who are deemed to be specialists in this field of Neurology.
Start your researching and ask others, family, friends, medical personal to assist you.
I know how difficult this must be for you, but be brave and as persistent as you can be.