Hi Jeannie1, smiles and sympathy coming your way.
You have started a new life that is not pleasent or easy. I am in the 21 year of this circus and it is always eventful. It is very frustrating and humiliating to get thru what is supposed to be just another day.
With the pain and immobility caused by RSD it is sometimes almost impossible to get thru another day.
I hurt for you. I am 21 years with RSD. I can tell yu lies, but that is not who I am. I am a fighter for life, a daughter of a strong Mom and Dad, and will not lay down till God says it is time for me to come home.
I can share war stories with you of my 21 years, but seems you need some comfort and hugs now. There is light at the end of the tunnel, beleive me. You are strong and have been productive in life. This will give you help in learning how to live this new life. This is your new job, keeping records, fighting with the medical system and the lack of consideration that loved ones hand out without even knowing they are hurting your heart. I lost it all, family, business, everything I worked for up to the age of 42 when I sprained my ankle in 1991. It is normal to be frustrated, angry, hurt, confused, insulted by the world you once knew.
However, it is up to you as to how you handle things and you have to put your RSD needs first. If you need sleep to escape from the pain, do it.
If you can't walk good enough to do certain things, you have to sit back sometimes and just watch the rest of the world go by.
You will have to take control and do what is best for Jeannie.
You have to educate your family too. They are in the dark trying to figure out why is Jeannie so different. All she did was break her foot? You have to MAKE them read a little and help them help you by educating yourselves and
accepting the fact that this is a life sentence maybe. It is hard and will take work and thru your pain you have to carry the ball.
Just the way it goes sometimes. I have a big shoulder if you need one,
God bless you and keep you strong. RSD with LUV, Andrea.