Originally Posted by Kevscar
Change, i've put on 4 /12 stone last time I checked can't do the simplest exercises, only go out for Hospital/Doctors appointments because evidently I'm ultra-hypersensitive aad I am one of the ones whose wounds may never heal.
I have been fighing the UK Government since 30/10/2010 to make them do something as based on US and Dutch figures we have at least 250,000 un/misdaignosed sufferers. The first e-mail that day went to the Prime Minister and deputy PM, finally got a reply from him yesterday passing the Buck.
Yeah, you have the routine down pat!
I am new to this group and found your note of despair and humor. I am 21 years with rsd and have to say this is the perfect new name. I used to call it Real Sh---y Disease and after i lived past the first 12-17 years began to call it a Real Special Dsease. It is not a fun thing and adding government issues turns it into a true nightmare. Fought 16 years with work comp and 7 with SSD.
It was a time of nothing but doctors, lawyers and one Indian Cheif. He helped me by the way. Cheif Red Fox was his name. Good medicine.
I offer you my sincere sympathy in battleing these issues. I found I had to do most of the homework and stand my ground with my proof.
Best to you and remember---you deserve to get attention and help.
They deliberately try and wear us down knowing how sick we are waiting for us to throw in the towel.
Get mad if ya have to...but have your proof on hand to fight with...
What do you have to lose? We have already lost life as we knew it...
Hang in there and reach deep for inner strength.
I am a praying person and I am on my knees still giving thanks for strength and wisdom. An ear and shoulder are here for ya!
I lived in the commonwealth of Pa du
ring my battle. I can feel for ya.
Hope to hear back. Peace & LUV, Andrea RSD reom Mars with LUV.
Lending Unity for Victory.