My feet are burning!

Dejibo · 08-31-2012, 11:35 AM

I have not had this happen in such a long time, but I do know I am mid mild flare. I feel like I am standing on hot pavement, even tho my feet are off the ground. OUCH! I went for a looong walk this morning, and it didnt bother me till I took my shoes off. I have looked, and my feet are clean, non blistered, no rocks in my shoes, and I have no callouses. WTH!

This better go away. im not allowing it to live in my house.

Sparky10 · 08-31-2012, 04:23 PM

One recent winter found me with cold feet when laying in bed. Not cold to the touch - quite the opposite. Not sure why I tried this but the relief came from sticking my feet OUT of the covers, into the cool air. An equalization thing? Maybe in my head?

Stranger things have happened, especially with this disease. Try wearing thick socks!

Whatever works, I hope it goes away soon!

SallyC · 08-31-2012, 06:54 PM

Yes, I sleep much more comfortably with my feet wiggling outside the covers.

Mariel · 08-31-2012, 07:17 PM

Now that I can walk longer distances again, since my treatment lowered my platelets, I find when I return from the mile-long walk that my feet burn. They are not used to walking so far.
But the bottom line is that I do have some permanent neuro damage in my feet. Even if my platelets are improved by treatment, and my ability to walk, I will still have some pain.
My pain is about l/10 of what it was when I was on chemo for the platelets and red cells,
and l/5 of what it was without anything--simply from years-long neuropathy affecting my feet. I would expect Dejibo that you have some damage that you can't get rid of just by detoxing. You helped yourself all sorts of ways by detoxing, but some damage remains.

Natalie8 · 09-01-2012, 01:40 AM

Sorry Dej! Hope you feel better soon.

Dejibo · 09-01-2012, 07:21 AM

its quite a bit better today, so its not officially part of a flare...whew! I think I walked too far yesterday. Saw a neighbor that I rarely see and I always feel bad that she walks alone, so I joined her, and she walks about double my pace. I sped up, she slowed down and we met in the middle, but my feet paid the price. Spent the day laying down.

Wont do that again, or will i?

Lynn · 09-01-2012, 08:09 AM

Sometimes I find that when this is happening to me, I can 'trick' my brain by wearing firm/tight socks. My neuro says this is because it 'fools' the pain gatway that is sending the signals.

Glad you are feeling better now. You live and learn

Sparky10 · 09-01-2012, 09:32 AM

Quote:

Originally Posted by Lynn

Sometimes I find that when this is happening to me, I can 'trick' my brain by wearing firm/tight socks. My neuro says this is because it 'fools' the pain gatway that is sending the signals.

Think that's what is happening when I when I wear socks on cold feet. Rather than the thickest socks being best, I have a pair of short tight ones that seem to work better. Isn't it nice to be qualified by a neurologist?

eefacm · 09-01-2012, 01:16 PM

My dad used to have trouble with his feet burning at night. After a lot of puzzled doctors he found one that said it was from exposure to herbicides. He farmed for many, many years. He never found a real solution.

Have you had any exposure to herbicides?

Best wishes.

Mariel · 09-01-2012, 01:37 PM

Calcium reduces burning in feet. Last night awake until 3 AM with burning feet. No spasms or jerking, just burning. I had not had a chance to take my full daily calcium quota, so I got up and took one. Slept six hours, no burning on awakening. Of course now that I'm up I can start the use-burning cycle all over again.
Sparky, I agree that life is a lemon and I do want my money back, but I am grateful to have had my husband for 40 years, and some sort of a life back then. It's all lemon now, and no sugar available for making lemonade