Originally Posted by aliciaj
There needs to be some kind of answers or treatments out there instead of just 'rest' because we can't rest, we have lives.
Unfortunately there is no silver bullet for this condition - I'm an information nut. If I have something on my mind I can't sleep until I get an answer. I've scoured the web and this site is the best source of information out there.
It's poorly understood and most medical professionals deny its existence. Unfortunately for us its all to real.
I was a pilot before my accident and now I'm in no position to be anywhere near an airplane. All I can do is rest and take it easy and hope that this curse will lift someday.
It's very easy to let it consume you - I am an atheist so religion and "god gives you only what you were meant to handle" does nothing for me.
I have to constantly remind myself to be grateful for what I do still have. I could have easily broken my neck in the fall that I had but that didn't happen so I must remind myself - It could be worse.
Hang in there and don't let go! You will find some sort of purpose in your life - even if its not the one your originally intended. This is the nature of life. **** happens. Bad things happen to good people - its how you deal with it that decides who you are.
Some good sites