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Weird stuff that makes me feel worse!!!

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Old 09-02-2012, 07:12 PM   #1
SpaceCadet
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Default Weird stuff that makes me feel worse!!!

When I drink any type of fluid, cold or warm, my cognitive symptoms get worse for hours and sometimes the rest of the day.

Sleeping is supposed to make you feel better, right? Not for me. I wake up hardly able to think or speak. It's very annoying.

I'm trying to get better, but everything that's supposed to be good for the injured brain makes me feel worse.

I've had such a weird "recovery".
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid and SSI.

Current symptoms: Brain fog, anxiety, panic attacks, memory issues, confusion, problems with spontaneity, sensitive to loud noises, trouble thinking, problems with producing speech, spacing out, word finding difficulties, tinnitus in both ears, random tingling in different parts of my head and many other things that I can't explain. I'm very easily overloaded which makes it nearly impossible to watch TV or use the computer.

If I could tell the world just one thing
It would be that we're all OK.
And not to worry 'cause worry is wasteful
And useless in times like these.

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Old 09-02-2012, 08:10 PM   #2
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That's crazy because I literally have the same problem! I dread taking naps or falling asleep because it almost feels worse when I wake up. It's totally weird and I don't have any answers on to why that is but just wanted to let you know your not alone!
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Old 09-03-2012, 09:44 AM   #3
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I found that to be true in my case. For me too much sleep = too much trouble. I try not to take naps anymore if I am dead tired. Even if I did I take only 20 mins nap. Also I don't take any medicines in the night which affects my sleep. Meds like Klonopin which stayed in my system longer messed me up quite a bit and gave me sleep apnea every morning. Amitryptyline was not that bad but made me very fatigued the next day. Not sure why I was given bcuz I didn't complain about sleep or terrible headache (only dull) in the beginning.

I even came off of Trileptal which doesn't do much. Only med works for me is Xanax and I take the minimum dosage (only in the morning/afternoon so it gets out of the system before night) which helps me to go do my things without much struggle (going to stores etc.,)

Another thing is when I eat something that also affects my dizzy feeling. Probably more blood going to stomach than brain. Even for that Xanax helps. May be my stomach acting up and this thing keeps it in check. Or relaxes some muscles? No idea.

When I have disturbed sleep (or slept only few hours in the night) next day my symptoms were not that bad. It is bizzare! I can sleep a lot if I want to without meds but I pay a big prize next day. My PCP mentioned she has Migraine and if she sleeps too much she gets terrible Migraines.

Only way is try different things (less sleep, more sleep, normal sleep etc., eat /drink different foods, try some other meds etc.,) to rule out the problem may be.

Someone said this thing about Insanity (in a non-literal sense): Doing the same things over and over and over again and expecting different results.

Cheers!
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Old 09-03-2012, 09:53 AM   #4
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Quote:
Originally Posted by pcslife View Post
Someone said this thing about Insanity (in a non-literal sense): Doing the same things over and over and over again and expecting different results.

Cheers!
That would be Albert Einstein
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Old 09-03-2012, 10:03 AM   #5
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I sleep more of the day than i'm awake. I'm almost always exhausted, with the exception of maybe 2-3 days per month where I can't sleep and stay up all day and night feeling wired.

If i go for a walk I HAVE to follow it straight up with a nap. Usually I start to feel like I could curl up in the middle of the street before I manage to get home...
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Old 09-03-2012, 10:51 AM   #6
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andromeda:

I know exactly what you saying about curling up in the middle of the street. I even get dizzy and heart starts racing and feel like I am going to pass out and affects my cognition too. For me all that street noise etc., bothers me I think. I don't go for walks anymore. Even for that I tried Xanax and able to manage.

I think my issues are in the ear (perilymph fistula) or something in the neck? No one knows.

Cheers!
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