Hi all! I'm brand new to here - about 10 minutes new, as a matter of fact...
For about a year now, my feet have been burning - really, really burning... they feel as though they're on fire! I also have pain in them, although, that pain is more intermittent and not as bad as the burning. I also have what I can only describe as weakness in my lower legs and cramping in them if I do too much - like stand for more than a half hour at a time. I've been using a cane to assist me for about 6 months now, and my burning and aching feet is so bad that it's debilitating...
Ok, a few facts:
I am a type 1 diabetic (for 13 yrs now) - take insulin Novolog - 20 units plus sliding scale 4/day
Lantus - 22 units plus sliding scale 2/day
I have hypothyroidism - take 125 mcg 1/day
High blood pressure - take 80 mg propanolol 1/day
40 mg lisinopril 2/day
High cholesterol - used
to take a statin, stopped because of how it made me feel (been off of that for sometime now)
Suffer from migraines - take Fiorcet as needed
I take Lyrica - 200 mg 3/day (Neurontin never worked, and Cymbalta gave me really, really bad headaches)
Was just put on Desyrel (to help me sleep) - 100 mg as needed
Was also just put on Effexor XR (to try and get me out of my depressed slump) - 37.5 mg. - but was told that they may up that at my next appt if I find that it's not helping
I have Lidocane cream and Lidoderm patches - NEITHER has helped my feet and legs feel any better
I'm not overweight, but I'm no longer active either.
My sugars have been quite elevated for some time now, but am working with my endo to try and correct it. I believe that my increasing pain levels have been detrimental in making my glucose levels rise... What a vicious and evil circle I've found myself in...
I no longer work because I can barely walk, but, even while seated, my feet burn and hurt ALL the time, which makes concentrating on anything near impossible.
I've had normal EMG/NCS test (but, from all the research I've done on SFN, I understand that it's normal to have a normal EMG/NCS is you have SFN)
My B-12 was tested and is fine
I have supports in my shoes
I don't drink.
I smoke the occasional marijuana to try and alleviate my pain - sometimes it helps, other times it doesn't...
I have a husband who loves me and supports me and a loving daughter who is almost 12 and is just as sweet as they come...
I have been to a pain management specialist (which took weeks to get into) with absolutely no help/relief from them... My family doctor is a joke.
You see, I'm on medicaid and I have to find dr's within my insurance's plan - and I couldn't afford to see a dr. without my insurance. I am quite poor.
Ok - with all of that out of the way - I need SFN testing done. I live an hour from Philly and an hour (in the other way) to Hershey. I'm willing to travel to either place. I've googled SFN testing with no luck. So, if anyone, out there in cyberspace could help me locate a place that does do the QST or skin biopsy test, I'd be forever grateful...
Thanks in advance for your help and support.