Originally Posted by shelbie4u
Hi painman, I've kinda checked out in life. Going from doc to doc, they telling me it doesn't spread, and them wanting to push a spinal cord stim. First Ive had 2 back surgeries (dont want to mess that up), getting MRSA, paddle leads breaking, batteries stop working (having it ripped out) or RSD spreading to surgery site. I tell them (pain management docs) that SCS is not an option for me. I have 4 options acceptable to me to try. HBOT, tDCS, ECT or I would be willing to try the Ketamine infusions. Im so frustrated I cry everyday. I talk to my insurance co on a regular basis (they keep telling me Im depressed and I need help) duh Im so upset they wont pay for the HBOT. Like you said...where are we to get that money? I think come on people!! It might put RSD into remission and for god sakes its only oxygen. Just more stress on us.
My thoughts on seeking help financially are....writing Oprah or Ellen or Phil. Not one letter of desperation but many. Possibly from many of us. Next thought is I typed in John Hopkins financial assistance. There is a form. I would not do it online I would mail it hardcopy and include your own personal letter. I have one on my desktop called letter of desperation. You are a very good writer and I truly believe if the right person reads it they might take you seriously and help you. Third thought is...get the procedures from John Hopkins, let them send you a bill, then file bankruptcy. Im so fed up with our medical association that I could scream. I feel like a tiny grain of sand on the beach and no one understands or cares. We are supposed to go on with life, learn to deal with this horrible pain. Manage my pain better? what? I get up every day so dissapointed that I lived thru the night. I breath and move. I think I have managed my pain. (ok, im rambling)
I think about you all the time and I truly wish you luck. Keep fighting not only for yourself but for all of us.
Smile, breath deep and stay strong
..hi all . I am chiming in on shelbie but I want to start off
ginnie.... try cvs they have 400 generic prescriptions for 12 dllrs and under...
ok.. now .. shelbie. I ask that you keep coming on to this site nightly.
I understand the will to move on is trying but if you are part of something larger it helps. speaking with the group of us will at least offer a safe haven to vent. no way would i say do this in place of professional care.
this is a bitter pill to swallow this beast . I am lucky enough to have a support group here on the island (granted I am new to it but still) , plus this site has allot to offer . great people, great advice, and great research ability along with moderators and administration. This is here ,we are here use us to help you.
and generally... I am working many fronts trying to make some headway.
I have written emails to my local government branches(I do not expect much of a response ) but maybe if we all start writing to them we can make them look
at us an see what we are talking about. I will chk in like I said this is the perfect forum for us to help each other and ourselves..(thank you neurotalk)
peace, and low pain...