all about the money... - Page 2

Nanc · 09-12-2012, 08:21 AM

Ginnie - not sure if you looked into this or not OR if any of your drugs fall under this plan, but there is a discount drug card offered in pretty much every state. Once you sign up for it (for free), you would be eligible for low cost or free prescriptions.

Just Google it - free drug card in Florida (or whatever state you reside in).

Hope this helps!
Nanc

ginnie · 09-12-2012, 08:33 AM

Does the Assistance program still cover you if you already have Medicaid, and medicare Part D?. That has been the issue with the company itself. If you have medicaid, you don't qualify for any patient assistance, even if Medicaid denies your claim, doctors letters and all. I will look at the program. thanks Jo*Mar, I wish you all the best ginnie

ginnie · 09-12-2012, 12:17 PM

Walgreens does have a discount card. However the revisioned price is still too much. No luck with the pharmacy company this a.m. either. I won't give up. I see my doctor on Friday. ginnie

painman2009 · 09-12-2012, 01:12 PM

Quote:

Originally Posted by ginnie

No paddle for me either. I did all that you suggested. Dead end so far. Docs. went to bat for me with mediare Part D and the drug manufacturer. I will have walgreens investigate for me directy today for dexilant.
I wish I could give you a paddle. I too, lost all I had over medical issues, and am loosing my paid for home because of it. I am not pleased either after 30 yeard of work. Medicare/medicaid does not guarantee you will get the care you need either. found that out the hard way. I do wish you better days painman. ginnie

hi guys.. thanx for the responses.. jomar good to know i am adding this to my list.. also cvs offers aid but only with the generics.. also local churches offer help to those in need for little this like non opiad drugs.. just for research. I would have never have thought to check with the church.. please keep it coming I am making a list ..hopefully I can get somewhere. this isnt just for me so any information is good especially if we can get it all in one spot...
we can join our knowledge and fight together or hold onto it and be alone.. I believe this is a huge truth of the world.. we made the first step to come together here lets keep it join... peace and low pain to all

ginnie · 09-12-2012, 01:27 PM

Keep in touch pain man, there are a lot of us in deep trouble over medical issues. Nobody can help getting sick. There needs to be help for those who need medicatons. I need B12 injections and med. part D won't cover that either. I am on a proton pump inhibitor, which stops absorption of B12. Too many things are not covered. I will check with my local churches. ginnie

shelbie4u · 09-12-2012, 03:02 PM

Hi painman, I've kinda checked out in life. Going from doc to doc, they telling me it doesn't spread, and them wanting to push a spinal cord stim. First Ive had 2 back surgeries (dont want to mess that up), getting MRSA, paddle leads breaking, batteries stop working (having it ripped out) or RSD spreading to surgery site. I tell them (pain management docs) that SCS is not an option for me. I have 4 options acceptable to me to try. HBOT, tDCS, ECT or I would be willing to try the Ketamine infusions. Im so frustrated I cry everyday. I talk to my insurance co on a regular basis (they keep telling me Im depressed and I need help) duh Im so upset they wont pay for the HBOT. Like you said...where are we to get that money? I think come on people!! It might put RSD into remission and for god sakes its only oxygen. Just more stress on us.
My thoughts on seeking help financially are....writing Oprah or Ellen or Phil. Not one letter of desperation but many. Possibly from many of us. Next thought is I typed in John Hopkins financial assistance. There is a form. I would not do it online I would mail it hardcopy and include your own personal letter. I have one on my desktop called letter of desperation. You are a very good writer and I truly believe if the right person reads it they might take you seriously and help you. Third thought is...get the procedures from John Hopkins, let them send you a bill, then file bankruptcy. Im so fed up with our medical association that I could scream. I feel like a tiny grain of sand on the beach and no one understands or cares. We are supposed to go on with life, learn to deal with this horrible pain. Manage my pain better? what? I get up every day so dissapointed that I lived thru the night. I breath and move. I think I have managed my pain. (ok, im rambling)
*edit*
I think about you all the time and I truly wish you luck. Keep fighting not only for yourself but for all of us.
Smile, breath deep and stay strong
Shelbie

painman2009 · 09-13-2012, 08:48 PM

Quote:

Originally Posted by shelbie4u

Hi painman, I've kinda checked out in life. Going from doc to doc, they telling me it doesn't spread, and them wanting to push a spinal cord stim. First Ive had 2 back surgeries (dont want to mess that up), getting MRSA, paddle leads breaking, batteries stop working (having it ripped out) or RSD spreading to surgery site. I tell them (pain management docs) that SCS is not an option for me. I have 4 options acceptable to me to try. HBOT, tDCS, ECT or I would be willing to try the Ketamine infusions. Im so frustrated I cry everyday. I talk to my insurance co on a regular basis (they keep telling me Im depressed and I need help) duh Im so upset they wont pay for the HBOT. Like you said...where are we to get that money? I think come on people!! It might put RSD into remission and for god sakes its only oxygen. Just more stress on us.
My thoughts on seeking help financially are....writing Oprah or Ellen or Phil. Not one letter of desperation but many. Possibly from many of us. Next thought is I typed in John Hopkins financial assistance. There is a form. I would not do it online I would mail it hardcopy and include your own personal letter. I have one on my desktop called letter of desperation. You are a very good writer and I truly believe if the right person reads it they might take you seriously and help you. Third thought is...get the procedures from John Hopkins, let them send you a bill, then file bankruptcy. Im so fed up with our medical association that I could scream. I feel like a tiny grain of sand on the beach and no one understands or cares. We are supposed to go on with life, learn to deal with this horrible pain. Manage my pain better? what? I get up every day so dissapointed that I lived thru the night. I breath and move. I think I have managed my pain. (ok, im rambling)
*edit*
I think about you all the time and I truly wish you luck. Keep fighting not only for yourself but for all of us.
Smile, breath deep and stay strong
Shelbie

..hi all . I am chiming in on shelbie but I want to start off
ginnie.... try cvs they have 400 generic prescriptions for 12 dllrs and under...
ok.. now .. shelbie. I ask that you keep coming on to this site nightly.
I understand the will to move on is trying but if you are part of something larger it helps. speaking with the group of us will at least offer a safe haven to vent. no way would i say do this in place of professional care.
this is a bitter pill to swallow this beast . I am lucky enough to have a support group here on the island (granted I am new to it but still) , plus this site has allot to offer . great people, great advice, and great research ability along with moderators and administration. This is here ,we are here use us to help you.
and generally... I am working many fronts trying to make some headway.
I have written emails to my local government branches(I do not expect much of a response ) but maybe if we all start writing to them we can make them look
at us an see what we are talking about. I will chk in like I said this is the perfect forum for us to help each other and ourselves..(thank you neurotalk)
peace, and low pain...

ginnie · 09-14-2012, 12:21 PM

No checking out of life. We are here for you. I run back to this site, when the blues get so bad i can't see straight. Vent, cry, don't stop the desire to get more help. I had Katemine infusions in my spine. this worked, but not permanentyly. It also didn't hurt. I hope you can find some solution. I too work to receive needed health care. I have medicare/medicaid, today i was told I would be receiving 5 bills for the 20% of my next endoscopy. well that didn't go over well, as I am loosing my home.

Hey painman, I did check with CVS. No generic for the medication I need to stop the progressin of barretts esophagus. Turned down flat from medicare part D, even with letters from the Doc. and me. CVS won't do compounds. The one pharmacy who does wanted 30$ per gram. I was ordered 240 grams, are they kidding? This is stopping me from the need of narcotics. so they would rather have me take morphine, than this compound that works? Our medical system is driving me bonkers, as it is alof of the rest of us. It is enough to make most people want to tear out the little hair we most likely have left.
I care about all of us in this situation. We all need the support of each other just to go day by day. Keep coming back shelby, vent, we will listen. In turn you will be helping us to cope the same way. Maybe we can give each other some ideas. I do care.....ginnie

Vrae · 09-16-2012, 10:19 PM

Wow, I couldn’t agree more with all of you on all levels. I so appreciate this site and all of you that share within it. I come here when I feel decent, and I come here when I want to scream, cry, give up, give in, or reach out. It is a source of good amongst all the bad. Unless you have RSD, there is just no way you could possible comprehend completely what it is to live with this disease day after day. It is also difficult for those who love us, who feel so helpless at times as they journey with us.

And our medical community and insurance companies, and government need to WAkE UP! It has become sheer and utter nonsense… period! It’s hard enough to fight through the days, and then to have to fight to get the help we so desperately need. It’s just ridiculous on every single level!

I thank God for all of you, and I pray answers, treatment options, and heck I’ll even go so far as to say a cure, for all of us will be within our reach. Until then, I pray for pain free moments for us all.

Jimking · 09-17-2012, 12:37 PM

painman2009, It may be worth the effort to look at the new insurance plans available to those with pre-existing conditions. This is part of Obamacare and is available in each state. The state of NY should have a website explaining the insurance and how much it costs. But the coverage does exist now. What is not set up quite yet are the insurance exchanges which will not go into effect until 2014. The costs are different in each state. There might also be a waiting period of 60-90 days.