Stimulation... PENS / SCS for face pain, AD , T.N.

[calewark]

Originally Posted by trainwreck

I am open to questions about the PNS or Pain pump. My PNS units all failed over the years for various reasons. I've had different manufactures for them. Medtronics being the most common. My pain pump is Medtronics and after 4 months it's working well except where the catheter moves in my spinal cord space and hurts at times. Well worth the discomfort for a 7 on the pain scale. The doc in CO at the University is only working on military personnel and is now down in Co Springs. The University won't touch PNS or SCS now and neither will that doc's old practice. They are parceling us out to other states for now. The rate of success isn't high enough to offset the cost they have said. I don't regret any of mine while they were working-they brought some relief for a few months each.

Hi,
I would assume you live in Denver since you mentioned the Univ. and the doctor that does the stim. I am aware of him and I know that he does not see patients any longer.
I received my stim in Aug. 2010. I have had real success with mine. I have it in all three branches. It has never been worked on since. I have had the rep from St, Jude's in the beginning work with my settings. The doctor that
did mine is in Denver and he is great and very experienced. He has done seminars in other states to teach docs his method. So many docs will say that it can't be done for V3 as the lead would break due to chewing, talking, and yawning. This is untrue. My doc has a method that works. If you would like his name please email me and we can talk. It is calewark@me.com
Cheryl

[BethO2L]

Howdy,,,,
I have had my PNS system done in January at The Cleveland Clinic,, and I have a V3 lead.

Never had any problems with it and it was never even mentioned that the V3 lead might not work or break,,,not had any problems with it and recently had XRays done and nothing has moved and it is working properly,,,,,

I'm so glad that it continues to work well for you,,, I think that these systems will in time become more and more available to more TN patients and if done properly will become another tool to help control this difficult disorder,,,

Good luck with your system and I hope you continue to get good results with your system,,,,,
I am going to email you and get the name of the physician since so many people ask for the referral in Colorado,,,,

Thanks again and best wishes,,,,,Beth

[Burntmarshmallow]

Beth sending you prayers and crossing my fingers for your rep and doc to work more magic at each and every one of your programing apts all next week.I know you r off to cleveland tomorrow. got your message lol your are such a "B" ha ha....B as in Beth ha ha ha stay strong warrior sister. safe travels we will talk when you can actually talk and not be in monster pain.I pray that is very soon Love ya t.n. sis.
PEACE
BMW