Originally Posted by r0xmyface0ff
I'm considering seeing a specialist at the hospital about this condition, but since I don't have insurance I want to see if my symptoms relate to anyone else's before I spend the money I don't have to see the doctor.
Here's what I have going on, and have had for about two years now:
Burning, relentless aching on the right side of my head just before my ear, running vertically along my head. The pain seems to radiate from this point and, in turn, causes stabbing, tingling, and aching in my right cheek, nasal cavity, and upper & lower jaw. I also get aching and burning in my frontal and rear temporal muscles. The pain last for 10-14 hours at a time and no medications (OTC) seem to help at all. There don't seem to be any specific triggers, and only rarely do I find these areas sensitive to touch. It's just non-stop ongoing terribly boring pain.
I've attached an image that indicates my pain.
Pink means aching, and a less severity while red means intense deep burning and high level of severity.
Please, any information will help; I don't know what to do and I can't keep dealing with this as it stands.
Hey there, im really sorry for all your pain.
Yes i strongly recommend you see a neurologist, of course i am not a doctor but i have ATN and 90 percent of what you describe is what i suffer from. Unlike classic TN which tends to be short sharp burst of very strong electrical pains etc, ATN can have that horrible deep knawing pain that for me, goes on for hours and hours, sometimes constantly with intermittent horrible stabbing sensations.
I understand you diagram fully, all of the hilighted areas cause bad pain but the degrees of pain and sensation of the pain feel different or worse in some spots, exactly what i have suffered from for years.
You should get evaluated as certain anti-epileptics (im on tegretol) can help to greatly reduce or 'calm' the level of pain for many.
Depending on the cause of TN surgical treatment can be helpful but only after explaining your pain history thoroughly to a neurologist can they guide you in the right direction.
It IS worth the money for even some relief at least, i lived in agony for a long time hoping for it to just 'go away' and i regret that very much, get some meds that might help ease the pain at least so you feel you can function. (for some lucky people, meds can make them virtually pain free)
Best of luck to you and if you need to chat anymore about it please let me know as this is extremely similar to what i go through, your not alone!!