Just a random nobody in pain

[Emma]

Hello everyone,


I have been lurking around for a while and finally decided to join. I'm new to this problem of constant pain, back in January I got officially diagnosed with arnolds neuritis (also known as occipital neuralgia) with consistently severe cephalalgia and just recently as 3 months ago dealing with a cervicobrachial situation that doesn't seem to get much better and it's worrying me.

Basically migraines are the bane of my existance. Instead of getting better, I feel as if I'm getting worse and it is becoming extremely overwhealming due to the fact that nobody I know truly grasps the extent of what it's like to be 24/7 in constant pain, because some WEEKS are just unbelivably hard to get along with.

This makes depression (among other things), a bit worse. So, I feel as if the only person I can talk to is my neurologist because nobody else understands a word I say, it's insane. This has really made me isolated and has taken a toll on me for the worst. I've been 57 days and counting on bed rest, out of prob the 60% (if not more than that) I've been bedridden (and I just turned 30). Reason why I am here, hoping to find other voices that may understand, and at least I can make sense and perhaps find hope from this.

I can't find comfort in family, they just worry so much and trying to explain as I hold their hand through this is just painful, sounds selfish but I feel like I can barely get myself through this. My boyfriend, sigh, let's just say this isn't doing any favors to the relationship and it's sure testing it. Friends, I don't have many and whatever few there were they're not included in my everyday to know this. I just don't even know what to do anymore, this is getting to my head, bad.

Anyways, sorry for the long intro and thank you so much for reading all that :/

[Darlene]

Emma,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forum for some assistance in your condition. You will find a large group of friends here.

Occipital Neuralgia:
http://neurotalk.psychcentral.com/forum105.html
Migraines:
http://neurotalk.psychcentral.com/forum32.html
Depression:
http://neurotalk.psychcentral.com/forum37.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Emma]

Thank you so much, Darlene

[ginnie]

Welcome to Neuro Talk. So sorry about the constant pain you are experiencing. If your Neurologist can't help, seek out a teaching hospital if you can. My neighbor is doing that very thing, as she has had these terrible headaches for years. She has a fentanal patch. I hope you get good information here and some other ideas to help. Also if you post what area you live in, maybe someone can help direct you in your state. I hope you can find some relief. ginnie

[sabimax]

HUGSSS great big gentle hugssss. sorry dealin with this at your age... keep your spirits up..