Originally Posted by pingpongman
I agree with Celeste. My neuro-opto was the first to DX me with MG even though my bloodwork was neg. He said he didn't care about bloodwork and it would show positive within a year. He started me on 80mg of Prednisone and my double vision cleared up and has been gone for 1 year. It seems to me a lot of people on this board have more luck with neuro-opto than regular neuros. My eye exam took about 2 hours but when it was over he was convinced it was MG. My bloodwork did come back positive about 4 months later. Let us know how it goes.
I hope you're appt. goes well with the neuro-ophthal. But....if it doesn't, don't give up!!!
My 1st visit with N-O sounds like it was similar to Mike's--2 hour long appt. and very thorough. At the end of the appt. N-O was quite sure I had MG. Unfortunately, my antibody panel came back negative and my SFEMG was interpreted as negative. No tensilon test was offered at the time b/c the SFEMG was the "gold standard" for diagnosis.
Seven years of double vision later I was evaluated by an out of state facility. Tensilon test was positive and they said I likely had MG. I've had a variety of treatments, some which have helped my generalized weakness, though the double vision has remained (to varying degrees).
So...my point is, don't give up. Keep on seeking answers. I wish I had ten years ago when this all started. Perhaps my double vision would have responded more positively to earlier treatment. And I wouldn't have had to retire early b/c of my vision issues.