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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-10-2012, 12:09 AM   #1
lyndsilou23
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Default New to forum...RSDas a Soldier

I was diagnosed with RSD in my right ankle May of 2011, after a reconstructive surgery. I am considered stage 2 right now, but my doctor is thinking i am on the verge of being stage 3. The army unfortunately doesnt have much information on this, and so my doctor seems kinda clueless too, so the only information I am getting is from the internet. I am going thru a medical retirement now, because I cant do my job anymore, and I will HOPEFULLY be out in the next few months. All the army is doing is for me is adding more medications, without giving me real advice or options.

When I get out, I need to find a new doctor, and was wondering if anyone had good recommendations for the Southern California area, preferably Inland Empire or Los Angeles?
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Old 10-10-2012, 12:35 AM   #2
lyndsilou23
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Default Any veterans or Soldiers?

Anyone here a veteran or soldier currently in dealing with this? And for the veterans- did any go thru the MEB process with RSD?

Looking for information about ratings for RSD, but since the Army doesnt seem to even acknowledge it, I am having a hard time finding anything!
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Old 10-10-2012, 05:45 AM   #3
betsykk
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You might want to try Ketamine infusions. They have helped my daughter bring her pain down to almost nothing for months at a time.

There is a group on FB that has posts from a soldier who went thru this treatment at the VA. Join Ketamine Klub for CRPS/RSD. You will find his posts if you do a search on there.

Liz
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Old 10-11-2012, 06:56 PM   #4
alt1268
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Welcome to Neurotalk, here you will meet lots of different people from various aspects of life and their disease.

First I wanted to thank you for serving. Second, sorry you ended up with RSD. I know you are some what limited to dr.'s being in the military but I can recommend that you ask your treating dr.'s to refer you out to a pain specialist. (one that treats rsd) this is covered with a referral.

I have seen other military personal on this forum and as well as the scs/pain pump forum.

Thanks again and welcome to Neurotalk.
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GOD help me be faithful in the midst of my suffering. Alt1268
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