Spread to tongue???

[fmichael]

A pro pos of Vrae's post, when I saw Dr. Fugedy in June, he said he has successfully treated someone with TMJ by using the inhibitory cathodal signal from tDCS on the trigeminal nerve. Sounds like it could be worth a shot here.

Mike

[tos8]

Thanks im glad your flair has settled down! I dont have lido patches because they never worked for me. I did have extra steriods and took them today to see if it helps take down some of the inflamation and i will try and keep my talking limited.

Originally Posted by LIT LOVE

Tos8,

Things seem to be settling back down for me, thankfully! My jaw isn't quite back to normal, but I can eat more than yogurt and soup again.

The jaw issue started almost 2 months ago, but the teeth and tongue issues came on very strongly, very fast. Getting back on a steady med schedule was essential for me. When the pain was at it's most severe I started taping a Lidoderm patch to my jaw last week. It certainly wasn't as big of a relief as a patch to another body area can be, but it seemed to calm things down somewhat. If you have them in, I would try one for 12 hrs for a few days. Last, if it's at all possible, stop talking for 3 or 4 days.

My experience was surely a reminder that as miserable as it is to have RSD, I'm very fortunate that it hasn't spread full body. AND, IMO this area is the most difficult I've ever encountered.

Please read Vrae's post in this other thread! http://neurotalk.psychcentral.com/thread176745.html

[tos8]

The RSD defenly attacked my vocal chords. I was in a TERRIBLE flair for almost a full week. Im out of the flair now, but my voice has not returned to normal and its been 2 weeks now. I assume its now a pemanent thing. Ive been in alot of stress as my little brother is extremely sick right now in the hospital, so im sure thats not helping at all. But i can say this is absoutly crap!

[LIT LOVE]

Originally Posted by tos8

The RSD defenly attacked my vocal chords. I was in a TERRIBLE flair for almost a full week. Im out of the flair now, but my voice has not returned to normal and its been 2 weeks now. I assume its now a pemanent thing. Ive been in alot of stress as my little brother is extremely sick right now in the hospital, so im sure thats not helping at all. But i can say this is absoutly crap!

I was unable to eat normal food for 2 months. My jaw is not 100%, but much better. I really freaked at the rapid spread of my teeth and tongue.

Please don't give up yet. If you can avoid talking for a week or two, it might make the difference. If you respond to blocks and/or K, that might help as well. (I did do a course of steroids along the way, and if I had had my normal meds, they should have helped.)

[k2kfla]

When I first had my injury before given the DX: RSD ~ I told every Dr since day one my tongue feels like i have pizza burn on it, nonstop. It's been for over 4 months now, i felt like i was crazy but reading this and knowing it can effect your mouth makes me feel better ( sane ) lol