Originally Posted by kl2568
It is actually women with hydrocephalus and life with hydrocephalus. There is this guy named ron who will give you friend suggestions from people in your area as well. It is fascinating and everyone is so nice and understanding.
The 'Women With Hydrocephalus' group is restricted. But I do know who Ron Patrick Kelleher is.
I did go to a hydrocephalus support group over the summer, with my father. He had largely left knowledge of my health up to my mother for my entire life. To the point that, if I did start to have a seizure, or start vomiting, he would probably call my mother. He stayed away from it. The group meeting we went to, was mostly parents with, kids no older than 15, that had hydrocephalus. There weren't any adults with hydrocephalus in attendance, other than me.