Originally Posted by Babygirl3234
Hi everyone! I am new to this forum and have a general question for those of you who are in your 20's or younger with CRPS, or are associated with someone that fits this description.
I was diagnosed two years ago at the age of 25. Still trying to work everyday, though saying it is a struggle is an understatement. I have had sympathetic blocks which didn't work and am currently awaiting my neuro stim trial. My CRPS was poorly treated from the beginning and just recently started getting the treatments I needed a year and a half ago.
So, my question is this, when going to a new doctor, do you find it hard to be taken seriously because of your age? I recently had to go to a new doctor and this isn't the first time this has happened, but they treat me like a common street criminal looking for drugs. Aside from aquatic therapy, and the pain treatments, I am also on opiates. Have tried several different "nerve meds", but they all make me very sick. All I get is lectures about how I am too young to be on these meds. Like I enjoy it? The problem is, they all want to lecture, but give no alternatives. It is frustrating to be treated this way. My family feels this same frustration as well watching me go through it.
Just wondering if I am alone in this battle? Maybe it isn't even my age, maybe it is a common thing to be treated this way because of the lack of understanding of this disease? Thoughts? Experiences?
I am 22. Diagnosed this last june, afterf dealing with several doctors, and no answers for a long time.
I have the same issue, i have asked for alternatives, and to try and notbe on opiods, but they prescribe them anyways, and then say im too young for this and, always treat me like im a druggie, makes no sense...
Also i no longer can drive, and my new doctor is 1 hour away now. (first visit was last monday) so my mother had to take me as she was the only one available to, as she works in the same town the doctor is in. So while at the appointment, i asked her to go ahead and come in with me so she could get a better understanding. The whole time the doctor was talking to her and not me, and telling her to make sure i do things? I kept saying, i do not live with my mother, she is hear for moral support, please speak to me. my mom said the same thing and he just kept on going back to her. It was so frustrating.
I think that being younger does have an effect on the way they treat you in some aspects, but at the same time i think majority of people with rsd have issues with doctors and being treated like druggies or whatever.
Hope things get better for you soon!