Originally Posted by ginnie
Welcome to Neuro Talk. So sorry you are experincing all that. I do not know where you live, but I would recommend a different kind of doctor to you, called a physiatrist. They speciail ze in pain, but treat at a cellular level. It would be worth your time to investigate. Sometimes a different branch of medicine can really help get things under control. I hope better resolution can be found for you. There is help and support here, and a caring group of people. ginnie
I agree with Ginnie. I have had Fibro for 36 years and spinal problems for around 30. My pain has been managed by a physiatrist for the last 13 years. Over the years, I have had three pain docs and he is my pick of the litter. Each change has been due to a geographic move......no doctor hopping.
Fibro is something you have to learn to live with. By that, I mean you must determine the things that aggravate it and try to avoid them. Determine the things that reduces it and do it. I must avoid stress
, erradic weather (can't do that
) and non Fibro pain. That is impossible with a spine that is shot. The Fibro goes wild when my body thinks it has been violated in some way. This means I must avoid unneccessary surgery and procedures. The last spinal surgery was a wicked one and threw me into a horrible six month flair. Something as simple as trigger point injections cause a flair. My body totally over reacts to minor pain. Just having blood drawn causes problems for me. I avoid what I can and tollerate what I can't. Things that help are moist heat, hot soaks, pool therapy and aerobic walking with a rollator back before I developed serious mobility problems. Getting those endorphins pumping was very helpful. The right meds vary from person to person. It's trial and error.
With this in mind, it will take a great doctor time to sort out your problems and come up with an effective treatment plan. Try to be patient. Easier said than done, eh? The stress from allowing yourself to get all worked up only aggravates everything. I have learned self hypnosis and that helps me relax and sleep better when I am in a flair. Plenty of rest, preferably sleep, helps.
Fibro not with standing, I would avoid spinal surgery unless you are dealing with spinal instability or a nerve compression. Surgery seldom reduces pain and often increases it. I have had six surgeries. Two reduced the pain as they were decompressions of very battered and angry nerves. Best wishes.