Originally Posted by tic2
Have contacted Ando PT and Melissa Ricter? And have appts.
I have neurogenic and vascular TOS. But the tinnitus is driving me crazy. I can either hear the IJV backing up with turbulent flow in sigmoid sinus or the scalenes spasm? Anyone else have this?
I have appt with Collins at UCLA for MRI etc.
Just tired of this. I can deal with pain but the tinnitus is ruining my life.
At this point not sure of who to see on regular basis. My neuro lost interest. Need internist or GP who can help me figure this out.
I am also in L.A. and I also see Dr. Ando. I drive 50 miles to see him. You definately want to see Dr. Ando to begin with. Dr. Sposa is good too but Dr. Ando is the Master. He has helped me alot.
Dr. Jordan is the best TOS Dr. for diagnosis in L.A.He also does pain management.but he doesnt take insurance so he can get quite expensive depending on your insurance. I dont think Dr. Miller is a TOS specialist . I have never heard the term scalene "reduction" i am assuming he means scalenctomy.
I have also consulted with all 3 Vascular surgeons here- Mckenna, Ahn and Gelabart at UCLA. ( I liked him the best).I have not seen Dr. Angle but Marc recommends him and he studied under Gelabart. The only one here that does scalenectomy only is AHn and he will require an angiogram and agioplasty first. There is a dr. in San Diego Dr. Brown who also does it. All the others here take your rib out. You will need to get the correct diagnosis before deciding whether you just need a scalenctomy. i was intersted in doing that too, but have since determined my ribs are a problem too. I have opted not to have surgery at this point but it has taken me a year + to start feeling better.
I am interested in finding out about your mri with Dr. collins. Does your insurance cover it? I have heard it is an all day event. There is another place by Cedars that does it too, but I dont know if it is as comprehensive. I am curious whether he can see the difference between disc pain and TOS pain. I may be calling him for an appt, as my insurance just started covering UCLA again.
You can also check out my thread: JKLS journey where I talk about all the Dr's I have seen in L.A.
Good Luck and Keep us posted!