Annette Funicello and CCSVI - Page 2

ANNagain · 10-17-2012, 10:45 AM

It was hard to see this but I know there are many more and w less help.

I was thinking that she was thinking- "Get those dam cameras out of here."

And when she was in the recliner, I was thinking- put her feet up- I know she wants her feet up!

I imagine her husband know what she would like.
ANN

SallyC · 10-17-2012, 11:52 AM

So true Ann. I was thinking the same thing!!!

Jules A · 10-17-2012, 05:11 PM

Although I am very thankful he came forward with this I also would imagine Annette, who was so private even when she was doing better, would not be happy to be filmed now.

Debbie D · 10-18-2012, 03:13 PM

That was so painful to watch...this disease is such a horrible robber!! I hope that she and her husband have enough funding to keep help coming in. Gosh...

Sparky10 · 10-18-2012, 10:42 PM

Wonder if the Baclofen pump has been considered for her. It has been known to unclench hands like hers.

kicker · 10-19-2012, 05:24 AM

Just call me Cleo, you know, Of De Nile. This is the second place I've been offered that link. Didn't click on it there either.

1. Who would it help? Me or Annette? Bet she hated having others rubber-neck at her life. Reading other's reactions, I know it would make me feel terrible.

2. Because Annette's life is that way, I've learned enough to know my MS is Mine, hers is hers. Her outcome does not predict my own and vice versa. I'll see what unfolds in mine. Beach Blanket Bingo never happened for me and I saw that movie.

Sincerely,
kicker (sitting here with eyes tightly shut)

Lynn · 10-19-2012, 06:37 AM

Hi everyone

Call me skeptical, but I am sorry, the caring and love doesn't quite ring true to me. My husband adores me - and he would protect my dignity, my pride, my spirit and my beauty (no, not in the same league as hers - but it is to him) until his dying breath.

I may be doing him (her husband) a massive injustice here, but as shocked as I was, I just wondered how she felt inside, knowing what was happening around her and I was hoping that this was, indeed what she would have wanted....but I know I wouldn't have wanted it - I think I would have been mortified - even if it was for a good cause (although I am not sure who exactly benefitted from it).

Lyn

SallyC · 10-19-2012, 08:43 AM

Thanks Lyn, I think you said what a lot of us were thinking. The benefit may outweigh the public humiliation of the well loved star of the past. Time will tell, but I will never forget seeing her like this.

It's the main reason that whenever I plan a funeral, it's always casket closed.

Sparky10 · 10-19-2012, 10:31 AM

I was curious how Annette has been and, like some of you, was sad to see the reality. It reminds me that if/when a medication or therapy becomes available that is proven to work for more than just 1/3 of us, I will certainly consider taking advantage. Everything offered now is too iffy for me. Even if Annette had taken a DMD from her beginning, she still might have come to this condition. That is what I mean by "iffy".

Apparently showing both extremes of MS's destruction doesn't appease some people. I'm not saying this AT anyone because we are all allowed our opinions. I understand kicker's tightly closed eyes as well as I understand (and appreciate) Aarcyn bringing this to our attention. Often I read that people do not like seeing the advertised mountain climbers and marathoners. Annette's condition is the far other end of the MS spectrum. To those who don't like seeing how well people can do, do you like seeing how bad it can be?

Is it only the middle ground you want to see?

Aarcyn · 10-19-2012, 01:55 PM

If I remember correctly, Annette Funicello's lifestyle is completely paid by the Disney Foundation per the request of Walt Disney. I believe I saw some sort of news item on television where she was at a commemoration in his or her honor and at the time, she was using a cane for balance.

I do not believe personal money for her husband was the motivation for filming an update on her physical status. I believe his and her motivation was altruistic in wanting CCSVI available and known for those afflicted with MS.

I am guessing he knows her better than you or me and had many private conversations about her progress and whether to show her current disability. Her close friend Nanette Fabray was also there to add to the backing of this documentary short.

For the statistical record, one has about a 66% chance of some improvement after the CCSVI procedure. DMD's offer only a 30% chance of trying to keep the progression of MS at bay. Over time, more expensive than the procedure and the big pharma drugs put your liver at risk.

And if it were me, I would want the world to see if I thought it would help. From my perspective, I did not see any humiliation. I saw love and devotion. And a body devastated by an ugly disease.

My vanity is all about people thinking I am a good person, a smart person. Beauty fades with age.

CCSVI was a chance to change my own journey which I traveled across the country to try back August 2012. And I am enjoying the benefit. Any improvement is a huge positive.

Simply stated, it worked.

I applaud her effort to bring the CCSVI Procedure to light. Again, her husband understands her and no doubt is following her wishes.

I personally do not deal well with being kept in the dark.