A cure for muscle weakness?? - Page 3

lurkingforacure · 10-19-2012, 07:44 PM

Quote:

Originally Posted by reverett123

It has been just over seven weeks now and I seem to be continuing a slow but steady improvement across the board! I have no objective measure on this, but subjectively I sincerely feel that there has been a fifty percent improvement in overall quality of life and it continues at a similar rate. And over the past week or so I have begun to notice that I am beginning to skip a pill here and there. Where I was waiting for the next two hours to tick by so that I could take another sinemet cr (200/50) and another sinemet 100/10 just so I could hobble to the loo, today I took the pair at 6:00 AM, 8:00 AM, and 10:00 AM. But I forgot the Noon and 2:00 PM doses and took a pair fifteen minutes ago at 3:00 PM just to "be safe" and because I have things that I want to do this afternoon. That last statement alone is a marvelous thing!

For a couple of weeks now, I have also found myself taking the last meds of the day around 8:00 PM instead of 10:00 PM. If I push things too much on this end I do find myself hobbling to bed in an "off" state but still in better shape than before. This time period was when I was most prone to freezing.

I have not frozen in several weeks!

I am sleeping soundly, but I awaken about 3:00 AM. Most mornings I go back to bed about 5:00 for another couple of hours. Nightly bladder output had been excessve (1 to 1.5 liters) but it is now about half that and normal the rest of the day. Also, much less lower back pain upon arising.

Time to first sign of "ON" is now 30 min to 60 min (was 60 to 120).

When I first get out of bed I have to be careful but there is definite improvement.

I am getting out into the world more and am having fairly normal excursions.

I am taking a single 500 mg capsule of creatine on alternate days and a single 750 mg cap of acetyl-l-carnitine on the other days and then taking one day off. I am also being careful to seperate those from the sinemet to avoid uptake conflicts.

To say that I am tickled pink would be putting it mildly.
Rick

are you taking the curcumin with this or not-a prior post indicated you were adding that....anything else besides the creatine and alc? ARe you not also taking d-ribose?

So glad to hear you are doing better!

reverett123 · 10-19-2012, 08:43 PM

No, haven't tried the d-Ribose. Just had a bottle is all.
What I am taking and, unless marked with an asterisk below, have been since before beginning experiment=
levodopa/carbadopa as noted above;
Propranolol (beta blocker for BP but has off-label use for PD as well);
Perindopril (ACE inhibitor with same note as abve);
cheap multi-vitamin;
ginger for GI motility;
pygeum & saw palmetto for prostate;
B-complex, magnesium, potassium - water solubles replaced as dictated by bladder (haven't felt the need for two weeks or so).

And that is all! A very light load by my standards!

Arsippe · 10-21-2012, 07:37 AM

[quote=reverett123;924109]No, haven't tried the d-Ribose. Just had a bottle is all.
What I am taking and, unless marked with an asterisk below, have been since before beginning experiment=
levodopa/carbadopa as noted above;
Propranolol (beta blocker for BP but has off-label use for PD as well);
Perindopril (ACE inhibitor with same note as abve);
cheap multi-vitamin;
ginger for GI motility;
pygeum & saw palmetto for prostate;
B-complex, magnesium, potassium - water solubles replaced as dictated by bladder (haven't felt the need for two weeks or so).

I have been on creatine for four, going on five weeks with a few missed days. When I am on it , I have noticeable increase in leg power. Am on L carnitine too, but I can't tell if it Is really doing anything. I tried NAC and it made me sick. I think amino acids depend extremely on the individual and what is good for one is not good for someone else and can even pose harm. Creatine has , however, been useful for strength, though not with my tremors.

soccertese · 10-21-2012, 08:53 AM

if i can make 1 suggestion. maybe try 1/4 the doseage of each supplement that rick recommended just to see if you tolerate the supplements and then increase in 1/4 increments. were're all different and it's likely many of us are taking other supps.

reverett123 · 10-21-2012, 10:22 AM

soccertese is right. We must take reasonable precautions but, even so, there is always some risk. Starting with low doses is an obvious one. But it is also true that some things work at low doses but not at higher ones. Turmeric is one example. And some things reverse their effects as doses climb. Botox, anyone? In dealing with the nervous, immune, and endocrine systems we can at times be balancing on a knife's edge. Low doses are exactly what we need in that situation. As I see it, I am trying to *lead* my body back into some tolerable state, not *push* it. -Rick

moondaughter · 10-21-2012, 10:54 AM

Quote:

Originally Posted by reverett123

But it is also true that some things work at low doses but not at higher ones. Turmeric is one example. And some things reverse their effects as doses climb. Botox, anyone? In dealing with the nervous, immune, and endocrine systems we can at times be balancing on a knife's edge. Low doses are exactly what we need in that situation. As I see it, I am trying to *lead* my body back into some tolerable state, not *push* it. -Rick

this knowledge has been practiced and proven thousands of times in homeopathic treatment that substances can heal in small doses that which they cause in large doses!

BRAVO!!

reverett123 · 10-28-2012, 03:35 PM

Actually just getting ready to shift gears. The mitochondria are doing well. I have decided that I am going to drop the creatine monohydrate for now and keep the acetyl-l-carnitine. My reasons are that:
1) the ALC has a more obvious benefit to me than the creatine.
2) There has been more research on the ALC;
3) That research has shown ALC to improve a half-dozen problems pertinent to PD;

So, I'm going to branch out a bit. A thing or two that I found out today has made me realize that I can substitute a small amount of ALC for a similar amount of levodopa! That is, instead of taking my 1:00 PM ldopa, I took 500 mg of ALC and it was no different. I also found that I can gingerly lengthen my two-hour leash out to three hours without going off. When this began I don't know.

All the improvements that I noted last time have held.

-Rick