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I'm new here and just need someone who understands

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Unread 10-29-2012, 11:32 AM   #1
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Confused I'm new here and just need someone who understands

My soon to be husband has temporal lobe seizures and i feel like its more my problem then his. he started having them about 2 years ago and since then we have had problems with our insurance, problems with his meds, and i just want to give up. It's really hard to deal with, when he has them he has no memory of them even happening, its like being scared to death and not being able to do anything about it. I was just looking to vent and maybe find some people who know a little more than me, thanks
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Unread 10-29-2012, 07:38 PM   #2
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Hi krainbow,
Welcome to the forum! I've had temporal lobe sz. for 40 yrs. and when I was younger I had a hard time getting insurance to cover me until I found out that if an insurance agency turns a person down do to there health it's discrimination and all you have to do is turn that ins. co. into the state insurance agency where you live and they will see that you get insurance with no increases.
I've had 2 brain surgeries to better myself and my husband of 26 yrs. has stood right by my side. I had a lot of problems with meds until I found out I could have a DNA test done to find what med would work the best for me with the least side effects. Also there's the ketogenic diet which works great reducing or stopping sz. Another thing your soon to be husband could do is start taking vitamin B12 1000 mcg. once a day and this will help reduce sz.
Each time I have a sz. I don't remember what happened and after the sz. is over I'm confused for a few seconds. The best way to explain it is a person whose had to many drinks and they don't remember driving home. There are many people out there in the world that have epilepsy. Today 1 out of 26 people will have sz. I look at all of the famous people who have epilepsy like Elton John, Alan Faneca (professional football player) Danny Glover, Alexander the Great, Edgar Allen Poe, and many more people. The problem today is they don't teach much about epilepsy even though it's one of the oldest medical problems. I wish you and your soon to be husband only the best and May God Bless You Both!

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Unread 10-30-2012, 12:41 AM   #3
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It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Looks like Porkette has given you some great information. I too have had epilepsy for over 40 weeks. And as Porkette to have a great supporting husband.

Please keep us up to date. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you and your husband.



"Life without God is like an unsharpened pencil -- it has no point.
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epilepsy, lobe, seizures, temporal

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