Originally Posted by Vowel Lady
I have lots of EAR PAIN and have questions related to Trigeminal Neuralgia. First, a little background:
I've had months of problems with one particular tooth (#31) as the result of questionable dental work. I recently had a tooth extraction and bone graft put in (same area). This caused, the following day, low grade fever, ear pain and very high blood pressure. With doctor approval, I had to 4x my blood pressure medication, plus add a second med, and that is now, for the most part, resulting in a high...relatively normal blood pressure reading (s). I also had lots of blood work and was determined to have Sjorgens Syndrome and no obvious infection. I also have a hx of lupus.
I went to an Oral Surgeon and he said that bone graft had to be removed...so even more dental work was needed...in the same area.
As far as I can tell, there were no complications during the removal. I removed the bone graft about a week ago. Since then, the ear pain is worsening. It feels like heavy duty pressure and boring in the center of my ear. I also have slight pain down my jaw...all on the side of this dental work.
I'm on antibiotics and a Medrol pack. I think today is the last day for my Medrol Pack.
The ear pain keeps on worsening....and now I get little relief from pain medications and no relief from OTC medications.
The Oral Surgeon said that eventually he will likely have to send me to a neurologist.
Do these symptoms (lots of ear pain and a little jaw pain) sound like TN to you? Does TN often come after dental work? ?Does anyone else here have TN that is primarily ear pain? Does anyone work with a neurologist from the treatment team out of Gainsville FL and can pm me about that? Any insight would be helpful. What can I expect from a neurologist (any neurologist?) I am in extreme pain and getting little relief from pain medication at this time.
The high blood pressure and ear pain part jumped out at me.
I just recently developed high blood pressure (in September 2012), and immediately after that I had my first T.N. shocking attack, which also attacked my ear.
A part of the high blood pressure symptoms I had was a ringing and discomfort in my ears.
I wonder if T.N. and high blood pressure go hand in hand in some cases?
I am now taking lisinopril to treat the high blood pressure, as well as not eating salty foods.
I've also been losing weight, mainly because I am afraid of eating, especially afraid chewing because it might cause a T.N. attack.
I take gabapentin for the T.N. It has helped. My T.N. are now less frequent, of shorter duration, and not as painful, but they do still occur.
I'm hoping after being on gabapentin for a few months, they will go away, but I doubt it. They will probably always be with me, but at least now they are manageable-- not so painful as they once were.
Another thing I am going to try is a magnesium supplement. I've heard it might help with spasms.