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Unread 11-11-2012, 04:24 AM   #1
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Default im new. trying to post

Default*rsd/crps. weird symptom_________________________________________Ok . have a new question/ symptom. Has anyone heard of anyone with RSD/CRPS having narcoleptic type events.*
I sit on couch to watch tv read ask questions on here and suddenly without warning im asleep. or should i say awakening and A few minutes or many minutes later i awake. its not like falling asleep. im awake one second and wham asleep the next. i dont feel it coming on. im not tired. Im a bit afraid to ask Dr. about it. i think im going nuts. have had RSD for 12 yrs. this is new. yes im tiered alot from meds and stuff but this is different. anyone else experience this one???? ty Susan
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tamiloo (11-11-2012)
Unread 11-11-2012, 04:30 AM   #2
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Hello isuern1. I'm not sure what you mean when you say you are trying to post. You already have 2 posts that have come up in the RSD forum about this topic, so I'm wondering if you had forgotten that all new members need to wait to have all their posts checked by a moderator. If there's no moderator available at the time, posts will not show up until there's one online to approve them.

Here are your posts in the RSD Forun .... click here and the link will take you there.

http://neurotalk.psychcentral.com/sh...948#post929948 .... this is where people have answered you.

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Unread 11-12-2012, 02:30 AM   #3
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It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.



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Unread 11-13-2012, 12:10 AM   #4
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Smile Hello isuern1 !


This is a wonderful place of support and understanding.

Make yourself right at home! Feel free to post in any of the forums. You'll find a caring soul around every corner and it's a very down-to-earth atmosphere.
Just holler if you need help finding your way around or have any questions. You'll soon feel very familiar with how the forum works, just give yourself a bit of time

It's great to have you!

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Unread 11-18-2012, 11:17 AM   #5
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My doctors told me that CRPS/RSD aside, anyone with high level chronic pain experience the brain actually re-wrires itself so to speak. Maybe the brain re-wires itself so it considers almost constant pain signals are NORMAL. I don't know.

Falling asleep that mimics narcoleptic events and/or symptoms, would be good enough for me to get whatever proper tests need to be done, in order to RULE OUT or diagnose you properly.

Also, what type of meds are you taking? Do you drive? Have you fallen asleep while eating, drinking, walking, climbing, sitting or standing, getting up from a chair or couch...etc, you know what I mean.

Lastly, I get sleepy often from battling pain combined with a semi-sedentary lifestyle these days, your RSD pain is enough to deal with, so get yourself to your doctor and he/she will advise you the next step, best of luck and I really hope you wind up okay.
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