Hope you're still hanging around the fourms.
There's lots here to read about. So many people in search of answers.
It's hard to get a handle on things when you're not able and don't understand why. You're not alone. All to often it is the case for many.
You do have to listen to your body. It's okay to go on disability if you can't work because of illness. You need to ask all the questions before you file, though.
I would mention to you, that a daily diary of sorts may come in handy. Onset on new symptoms, 0 - 10 pain scale, meds, activity level, ADLs, diet, changes that need to be noted, sleep habits, challenges, anything noteworthy.
Include things like names, addresses, telephone numbers, calls to whom and questions discussed, answer. Try to use it often, as it may become a resourceful instrument for the answers.