Thanks for your complete status. It helps.
First, I recommend you watch with your husband, the 6 segment YouTube called "You Look Great." It is at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be
It takes about an hour so you may need to spread it over a few sessions. It will be good for your husband to see it all. There is also a TBI Survivors Guide at www.tbiguide.com
. It is 84 pages that you can print out. Read it as you have energy and highlight the issues that apply to you.
I am not impressed with the online information about concussion that the Mayo clinic publishes. Very out of date. They tell you to "pushing myself on days I do not feel well and holding back on days I feel well." I and others wholeheartedly disagree. Dr Robert Cantu, one of the most respected neuros regarding concussions suggests quiet rest. That does not mean napping or such but instead a moderated day of low stress activities with just enough stimulation to keep a good blood flow in your brain.
Trying to help with homework may be too much, especially late in the day. I tried the OT, and PT route at a neuro rehab facility and found it counter-productive. It is great for those who have been in a coma and such but not so good for those of us with PCS. Often, those recovering from a severe TBI with coma are trying to recover to a level similar to our PCS condition. I think they are looking for insurance billings more than patient improvement.
The most important issue in my experience is for you to learn what works to allow you to make it through the day. The constant challenges from the Mayo people is just stirring your brain up.
Keep in mind that when friends stop by, they need to understand your limits with conversations. Only one visitor at a time or if there are more, only one can talk. Making the brain switch between different peoples comments can be too stressful. If they talk over each other, it is disastrous. When I go to church, I can not go to service, just Sunday school. The sounds in the sanctuary are too much for my brain, too many echoes and too much sound volume.
The concussed brain will hear echoes that very few people ever hear. It will also try to hear each individual voice around you during singing or responsive speaking. If I do go into service, I have to be wearing my foam ear plugs to reduce the sound. At your stage, I highly suggest using foam ear plugs when you are out in noisy areas.
I bet the mall and Christmas shopping will be a stressful and challenging event for you this year. Grocery stores are usually more peaceful late at night. Avoid them on weekends.
Noise in your home can be a problem just like too much visual stimulation from a TV constantly on or walls covered with pictures. Try to find a visually quiet place at home to do simple activities. Sewing, knitting, crocheting, arts and crafts and such that are manually oriented can be good stimulation without being stressful. The hands can not go faster than the concussed brain can tolerate,
Peaceful melodic music is good for the brain. Hopefully, you can find some music that settles your brain so you can just 'coast' as you listen to it. Have you had your ears examined by an ENT or audiologist who works with balance issues? Sometimes there is a need for some Epley Maneuver treatments, especially if you feel like you are leaning to one side.
Have to tried ginger yet? Ginger Snap cookies are the easy way or you can buy ginger tea or natural flavored ginger ale or ginger in capsule form.
This should give you a good start. Please remember to have your husband watch the YouTube. It will open his eyes to what you are going through. If you ever feel like you want to comment to me privately, use the Private Message or Email link that drops down under my screen name when you left click on it. If you use the Post Reply button to the bottom left of posts, it will not quote the previous post.
Hope you have a good day.
For those interested in knowing what an Alpine Slide is, here is a link to an article about the Timber Twister and Alpine Slide. Looks like the Lutsen Mtn Alpine Slide is a wild and fast track. http://minnesota.publicradio.org/col...ne-slide.shtml
My best to you.