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RollCall for PALS

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Unread 10-18-2011, 12:02 AM   #41
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Join Date: Aug 2006
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Hello kiwicafe,
I copied your post to the main area of the ALS forum, here is the link to it -

You might also find other threads or posts there about diet suggestions for ALS.
Check the Helpful sticky threads near the top of every forum.
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Unread 10-20-2011, 08:13 AM   #42
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Default going to get the word tomorrow

Have had all the tests for MS and no go then went to have an EMG and low and behold the dr giving it asked if I ever heard of als well of course I had as my first nuero mentioned it speech is slurred from time to time and both thumbs are starting to atrophy still have grip just not good like it was. I intend to try and fight with all I have and hope my doc realizes that he needs to help if not another doctor will be here, I have heard so much and really know nothing much til I see him tomorrow but I am ready to hear it and get started on the work I need to do Hope everyone here is having the quality they need
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Unread 11-16-2012, 11:54 AM   #43
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Location: St. Louis, MO
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Default Newly diagnosed

Reside in St. Louis area.
Diagnosed a little over 2 weeks ago after seeing one medical specialist after another and had cervical fusion surgery scheduled.
At this time, I have left leg and arm weakness and loss of dexterity in left hand.
In hindsight, symptom probably began mid-July with mild left sided limp subsequent to a fall. A step increase in balance issues began around mid October. Mostly stable since then except that fasciculations began about 2 weeks ago.
I get around fairly well with a cane and can manage stairs so far. Ordered a stair lift.
Trying to wrap my mind around it so that I can plan and not focus on it all the time.
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Unread 10-08-2013, 07:17 PM   #44
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Smile Aubrey

Hello, my husband has ALS. His name is Aubrey. I think he has what is known as bulber ALS. His symptoms started with slurred speech and progressed to difficulty drinking/swallowing. He was diagnosed this past August, 2013.
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