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Unread 11-15-2012, 01:09 AM   #1
SleepyD
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Join Date: Nov 2012
Location: We live on a farm (695acres) in Central Missouri
Posts: 4
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Hi, I'm very new at this so I am actually very nervous about somehow doing something wrong so please be patient with me--thanx.
I have a number of health problems and am hoping to learn more about them from this site as well as find others with similar issues and see how they are dealing with the same health problems.
As a young girl (I'm 44 now) I had problems with standing for any length of time I would get physically ill. If I got too warm, or upset, I would break out in clammy sweats, I had migraine headaches and had a hard time staying awake in classes my notes from back then consisted of two or three words and then jagged lines running down the page, it was very frustrating and my parents were of the it is all in your head, stop fooling around, pull yourself up by your bootstraps variety...arghhh. Fast forward to college and I caught murine typhus while travelling in Europe, I had over six years of active mono titers, was diagnosed with Chronic Fatigue and chronic Epstein Barr and chronic CMV(because just one type of mono wasn't enough for my body apparently:I was diagnosed with Bipolar disorder in my 20's and was also diagnosed with Relapsing Polychondritis. In my late 20's my mom (who became much more understanding of my health issues after my dad died) found an article about a study at Johns Hopkins about Chronic Fatigue Syndrome and POTS (which they were calling neurally mediated hypotension) My mom and I flew to Baltimore, had the tilt table test done , I passed out almost immediately and lost all blood pressure they dropped me injected me and diagnosed me...several years later I was still having issues and went for a sleep study I was diagnosed with Idiopathic CNS Hypersomnolence with a min and a half average sleep latency, the test has been repeated years later with same result...so If you have any suggestions I welcome them. Thank You.
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Unread 11-15-2012, 01:59 AM   #2
Darlene
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Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 10,997
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Wink Great to meet you!!

SleepyD,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forums for some assistance.

Sleep Apnea & Sleep Disorders:
http://neurotalk.psychcentral.com/forum45.html
Fibromyalgia and Chronic Fatigue:
http://neurotalk.psychcentral.com/forum12.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.


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"Life without God is like an unsharpened pencil -- it has no point.
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Unread 11-16-2012, 03:13 PM   #3
Rrae
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,106
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Smile Hello SleepyD!

Welcome to NT!

You've found a wonderful place of support and understanding.
There are so many caring people here.

Make yourself right at home! This is a very down-to-earth atmosphere, so feel free to post anywhere. You'll find a friendly member around every corner! Just holler if you need help in finding your way around or if you have any questions!

It's great to have you!

Caring,
Rae
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