Hi, I'm very new at this so I am actually very nervous about somehow doing something wrong so please be patient with me--thanx.
I have a number of health problems and am hoping to learn more about them from this site as well as find others with similar issues and see how they are dealing with the same health problems.
As a young girl (I'm 44 now) I had problems with standing for any length of time I would get physically ill. If I got too warm, or upset, I would break out in clammy sweats, I had migraine headaches and had a hard time staying awake in classes my notes from back then consisted of two or three words and then jagged lines running down the page, it was very frustrating and my parents were of the it is all in your head, stop fooling around, pull yourself up by your bootstraps variety...arghhh. Fast forward to college and I caught murine typhus while travelling in Europe, I had over six years of active mono titers, was diagnosed with Chronic Fatigue and chronic Epstein Barr and chronic CMV(because just one type of mono wasn't enough for my body apparently
:I was diagnosed with Bipolar disorder in my 20's and was also diagnosed with Relapsing Polychondritis. In my late 20's my mom (who became much more understanding of my health issues after my dad died) found an article about a study at Johns Hopkins about Chronic Fatigue Syndrome and POTS (which they were calling neurally mediated hypotension) My mom and I flew to Baltimore, had the tilt table test done , I passed out almost immediately and lost all blood pressure they dropped me injected me and diagnosed me...several years later I was still having issues and went for a sleep study I was diagnosed with Idiopathic CNS Hypersomnolence with a min and a half average sleep latency, the test has been repeated years later with same result...so If you have any suggestions I welcome them. Thank You.