Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Traumatic Brain Injury and Post Concussion Syndrome

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Post Concussion Syndrome Useful Links

Reply
Thread Tools Display Modes
Unread 11-17-2012, 04:53 PM   #21
peacheysncream
Member
 
Join Date: Aug 2012
Location: England, GB
Posts: 181
My Mood:
Default

www.ninds.nih.gov/disorders/tbi/detail_tbi.htm

This is a great link from a British site all about TBI's and the research going on for it.
__________________
I am a 34 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs.

This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance.

The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months.

I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion.

The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days.


I have had 6 CT's, 2 MRI's and am under 3 specialists.

I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation.
peacheysncream is offline   Reply With Quote
Unread 11-25-2012, 06:58 PM   #22
sospan
Member
 
Join Date: Jun 2012
Location: Wales, UK
Posts: 284
Default

Hi I found this site http://happy-neuron.com/

It has some free tests that stretch and analyse your mind. It has a one week free trial.

When I tried the memory tests I got 50% of what my wife got - not heard the end of it yet.

The one that really threw me was the test where you have to identify a series of pictures of hands - and whether it is a left or right had. There are no intense pictures or sounds just simple photographs of hands in different positions- sounds simple? I did the test once and it overloaded my brain so much it took me 5 hours to recover.
__________________
January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
sospan is offline   Reply With Quote
"Thanks for this!" says:
Theta Z (11-25-2012)
Unread 01-16-2013, 01:53 PM   #23
thedude58
Junior Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 71
Default More Useful Links

Good information about TBI and concussion.

A patient's perspective.
"Sixteen years ago doctors assured me that I would return to my old self in a matter of months. To date nearly 200 months have passed since that fateful day in 1982, and I have yet to be restored to my pre-injury splendor. At this point I am pretty much convinced that the effects of post concussion syndrome will plague me into my golden years."
http://www.headinjury.com/linktbinih.htm

I found the Tool Kit helpful as well.
http://www.headinjury.com/library.htm#toolkit
__________________
Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea
thedude58 is offline   Reply With Quote
Unread 03-29-2013, 05:24 PM   #24
Mad Knitter
New Member
 
Join Date: Mar 2013
Location: Colorado, USA
Posts: 3
Default

Thanks Chemar for the help and the links!! MUCH appreciated! )
Mad Knitter is offline   Reply With Quote
"Thanks for this!" says:
Chemar (03-29-2013)
Unread 06-26-2013, 08:51 PM   #25
bluehiroko
Member
 
Join Date: Apr 2013
Posts: 175
Default

http://www.labryshealthcarecircle.co...n_workshop.pdf

Useful article on brain nutrition.
bluehiroko is offline   Reply With Quote
Unread 06-27-2013, 06:51 PM   #26
Mark in Idaho
Elder
 
Mark in Idaho's Avatar
 
Join Date: Feb 2009
Location: Mountains of West Central Idaho, USA
Posts: 6,020
Default

There is an important point on page 2 of the above article. It says:

Good quality fats and protein are very important.
Those of us who have avoided eating fats all our lives are having greater brain degeneration late in life.
This is because we have been missing the fats needed to make neurotransmitters, cell membranes (the brain of each cell) and hormones.
Whether or not you are afraid of fats, here are some suggestions.
Eat the organic chicken with the skin
and eat duck and chicken eggs including the yolk.
Supplement your foods with cold-water fish oil and coconut oil from the best sources.
Eat 4 teaspoons of coconut oil/day, more if you can, to avoid/cure dementia (see Dr. Mary Newport’s article)
__________________
Mark in Idaho
.


59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
Mark in Idaho is offline   Reply With Quote
Unread 11-08-2013, 12:18 PM   #27
MiaVita2012
Member
 
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 677
My Mood:
Default

http://www.naturepacific.com/content...lzheimers.html
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With Quote
Unread 02-11-2014, 01:24 PM   #28
EsthersDoll
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 701
Default

Hormone imbalance caused by concussion. Neuroendocrine dysfunction caused by concussion. etc.

http://www.scientificamerican.com/ar...ne-deficiency/

http://www.dcoe.mil/content/Navigati...ing_Slides.pdf

http://www.dcoe.mil/content/navigati...mendations.pdf

http://www.tbi-research.org/neurotrauma09kreber.pdf
EsthersDoll is offline   Reply With Quote
Unread 03-27-2014, 07:49 PM   #29
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 662
Default

Referrals for binocular vision screening (for convergence insufficiency and vision therapy, etc) are available at http://www.braininjuries.org and http://www.nora.cc
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
Unread 04-05-2014, 02:02 PM   #30
pierre93
Junior Member
 
Join Date: Apr 2014
Posts: 10
Default Post concussion help

hey guys

i need help , about 2 -3 weeks ago i was at the gym and a rubber (but heavy) weight fell on my head , it didnt knock me out but about 20 mins later i felt strange and drousey and had to be rushed to hospital by my family , they did a CT scan and everything was fine. The next day i felt ok and returned to work the day after , but i noticed i started feeling strange , 3-4 days after my injury i was at work and just felt terrible all of a sudden everything became super bright and noisy , i felt so overwhelmed i called my manager and said someone needs to cover for me and was crying. i felt like i was going CRAZY!!

for the whole of that week i felt DRAINED , i had a very weird heavy feeling on my left side , it was teriible i literally could not do anything my brain just felt fried. During that week i had a consultation booked (i have cosmetic surgery booked) i just felt still really low and heavy , the surgeon advised for an ambulance to be called , they took me there and i was told i had post concussion and i need to rest and time off work.

i must say i feel like ive improved since my first week but i still feel so terrible. im still sensitive to light and loud sounds , i have a weird kind off numbing feeling on the left side of my head and kid of in my ear , i feel so " not on earth" its like im dreaming , i just feel so down and stressed , my home dont feel like my home anymore , i feel so alone , i used to love watching youtube videos and movies and i just cant anymore because i cant concentrate , time just dont feel like it use to be , i go to sleep like this , wake up like this and its so overwhelming to deal with

i had soooooooooo much planned , surgery , a trip booked to america with my friends , i just cant see it all happening now , this has effected my life so much!!! im only 20
pierre93 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Post Concussion Syndrome? yannimac Traumatic Brain Injury and Post Concussion Syndrome 17 12-14-2013 07:26 PM
Has anyone had post concussion syndrome? Nikko Headache 63 11-25-2012 12:20 PM
Post Concussion Syndrome MattM New Member Introductions 3 05-01-2007 08:25 PM
post concussion syndrome Toadally New Member Introductions 3 04-29-2007 05:02 PM
post concussion syndrome.....help!? dougincanada General Health Conditions & Rare Disorders 3 01-26-2007 01:35 PM


All times are GMT -5. The time now is 04:06 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy
NeuroTalk Archives