Go Back   NeuroTalk Support Groups > Health Conditions M - Z > Reflex Sympathetic Dystrophy (RSD and CRPS)

Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Our Stories & Introductions

Reply
Thread Tools Display Modes
Unread 10-29-2012, 12:31 PM   #461
rhonda hope
New Member
 
Join Date: Oct 2012
Location: ga
Posts: 1
Default

Hello im rhoda hope and i have rsd/crps in my right arm. The doctor has tried several treatments and is now considering a spinal cord stimulator. Has anyone else ever tried it and what was your results?
Thanks to any one who responds
rhonda hope is offline   Reply With Quote
Unread 10-30-2012, 06:53 AM   #462
CWilhite
Junior Member
 
Join Date: Sep 2012
Location: Hope, Indiana
Posts: 29
My Mood:
Default

Hi guys,

I've posted a few things on here but I thought I would post here as well. I'm Crystal and I've been battling RSD for the last two years. In 2010 I broke my ankle while at work, it was a silly injury and seemed minor in the beginning but looking back, my life has changed drastically. Since my injury I've 7 surgeries, one of them including a permanent implant for an SCS. Along with the surgeries, I have also had 7 Lower Lumbar Sympathetic Nerve Blocks in order to try and force my RSD to calm down or go into remission. Since my injury is surrounded by a Workman's Comp case, I've had to work around what they feel like is necessary treatment for me to receive. I feel like after two years, I still have many unanswered questions about what's going on with my body and I'm still undergoing changes with my RSD. I've already found so much wonderful information from reading your posts and I look forward to continuing learning and hopefully from what I've experienced I can help someone too!
CWilhite is offline   Reply With Quote
Unread 11-02-2012, 05:54 PM   #463
alt1268
Member
 
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 899
Default

rhonda hope,

Sorry to hear you have rsd. But welcome to the group. I tried a stimulator and the trial did not work for me, but many people have had good results from it.

Quote:
Originally Posted by rhonda hope View Post
Hello im rhoda hope and i have rsd/crps in my right arm. The doctor has tried several treatments and is now considering a spinal cord stimulator. Has anyone else ever tried it and what was your results?
Thanks to any one who responds
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With Quote
Unread 11-02-2012, 05:58 PM   #464
alt1268
Member
 
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 899
Default

Welcome I hope you find the answers you are looking for. Here we learn from each other, so if you have tried something and it has worked or failed please share your experience.

I too deal with workers comp and know your frustration. It is a constient battle. Just hang in there. God as a plan for all of us.

Quote:
Originally Posted by CWilhite View Post
Hi guys,

I've posted a few things on here but I thought I would post here as well. I'm Crystal and I've been battling RSD for the last two years. In 2010 I broke my ankle while at work, it was a silly injury and seemed minor in the beginning but looking back, my life has changed drastically. Since my injury I've 7 surgeries, one of them including a permanent implant for an SCS. Along with the surgeries, I have also had 7 Lower Lumbar Sympathetic Nerve Blocks in order to try and force my RSD to calm down or go into remission. Since my injury is surrounded by a Workman's Comp case, I've had to work around what they feel like is necessary treatment for me to receive. I feel like after two years, I still have many unanswered questions about what's going on with my body and I'm still undergoing changes with my RSD. I've already found so much wonderful information from reading your posts and I look forward to continuing learning and hopefully from what I've experienced I can help someone too!
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With Quote
Unread 11-02-2012, 08:40 PM   #465
pg2005
Junior Member
 
Join Date: Jul 2012
Posts: 54
Default

Guess I better introduce myself. You can call me PG. I've had CRPS in my left leg for 8 years now. Things have only declined over that time. Been through the ringer with treatments. I declined a SCS several years ago, but have now decided I'm going to try it. Currently awaiting insurance approval.
pg2005 is offline   Reply With Quote
Unread 11-03-2012, 03:23 PM   #466
alt1268
Member
 
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 899
Default

Welcome PG2005. Sorry you have been going through such pain the last 8 years. there is a scs site striclty for people who have or are getting scs. check them out.

Quote:
Originally Posted by pg2005 View Post
Guess I better introduce myself. You can call me PG. I've had CRPS in my left leg for 8 years now. Things have only declined over that time. Been through the ringer with treatments. I declined a SCS several years ago, but have now decided I'm going to try it. Currently awaiting insurance approval.
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With Quote
Unread 11-04-2012, 11:34 PM   #467
Mark56
Grand Magnate
 
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,428
Smile Hi ALT.... Been a While!

Hi ALT, I am so glad to see you posting on new member introductions! What a profound ministry of sharing the blessing of care with folks! You are very active, and I am glad to find you here after missing you on the SCS subforum.

Hi Rhonda, CW and PG! There are answers to be learned from all perspectives of the approach to medicine and a possible alternative, if not as in my case substitute, to pill methodology to pain management. I have the Boston Scientific Spinal Cord Stim and have used it 24/7 now for well over two years, achieving full low lumbar and leg pain management with its electronic signature.

Numerous manufacturers offer alternative devices, and some even are used to inject medications directly into the body via a pain pump mechanism, many of which are addressed on the SCS and Pain Pump sub forum under medications and treatments found here-

http://neurotalk.psychcentral.com/forum118.html

Come on over and check us out by clicking the link to the master web directory of our threads! You will meet cool folks from all over and many paths of life who similarly seek answers to important questions while also keeping the eyes alert for a sense of HOPE.

You might even find us engaging from time to time in a virtual party or BBQ at Pooh's ranch in Nowhere up there near Somewhere Out There. We do have fun, and even are known to LAUGH.

Hoping to see you on the threads,
Mark56
Mark56 is offline   Reply With Quote
"Thanks for this!" says:
alt1268 (11-05-2012)
Unread 11-05-2012, 10:35 PM   #468
Lorax3
New Member
 
Join Date: Nov 2012
Posts: 1
Default Fibro & CRPS

Hi. I've been suffering from Fibro for something like 15 years or more. Three years ago, walking down the stairs, I got off balance (even though I was holding on) and went left as my left foot hit the last step. I sprained my ankle horribly...brought neighbor kids to the door with my screams. (embarrassing!)

The pain from my CRPS is getting unbearable. My insurance company is stupid. I finally got a wheelchair but no gel pad and sitting in it gets excruciating in my left hip. The pain's gone from my left ankle, up the leg into the hip. In the first year it's also affected my left arm but to a lesser extreme. It's now trying to go to my right leg.

I've been doing all the exercises I can to prevent if from moving. I used to use the Wii with my cane doing balance exercises but can no longer do that. I'm down to basic Yoga stretches. Meanwhile, I've gone back for physical therapy and the insurance company, again, keeps screwing up. I'm on an STS machine which they say they are having very good results with. But, it's a lot of visits and who wants to pay for that? They don't! And, I went 6 times, was supposed to get 6 more right away but they waited a whole month. I had to start over. They gave me the 6 again and I got 2 more visits lined up. The appeal will take a month. So, I have to extend my visits to only 1 a week and maybe pay for 2 more visits myself in hopes that I'll get more from the insurance. We are too poor for this.

Top all of that off (I didn't tell my whole story, that would take a book) my Father-in-law and brother-in-law on my husband's side of the family are dying. My x-sister-in-law is also dying. I didn't divorce her and she's been my very good friend for 31 years. Everyone is far away. I'm going to grit my teeth and go to my brother-in-law's memorial which should be soon since they expect him to pass very soon...waiting is awful. Then, I can also see my sister-in-law while we are south. I know it will wreck me for a good week or more but I have to be with them. I won't get to see my father-in-law, though. We just can't afford that. My hubby will get to see his dad one last time and I may have to sell some things for that but it's a must.

Sorry I wrote so much. *eek* I'm just looking for others who understand.
Thank you,
Jane AKA Lorax3
Lorax3 is offline   Reply With Quote
Unread 11-06-2012, 06:31 PM   #469
alt1268
Member
 
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 899
Default

Welcome to the forum. I am sorry you are going through such a bad time with so many family members passing away in such a short amount of time. I can't imagine. I had a ankle injury which lead to my rsd and now I have it in both ankles. Worse in the right.

I am glad though to have you here at Neurotalk especially on the rsd forum. Here we are like an extended family; learning from one another.

Feel free to ask questions, rant, rave, etc. We have all been through our good days and our bad. Again, welcome!
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With Quote
Unread 11-18-2012, 05:39 AM   #470
jpcrps
Junior Member
 
jpcrps's Avatar
 
Join Date: Nov 2012
Location: Hawaii
Posts: 39
Default Hi new here

Sorry, I posted an intro message about myself but not sure if it went to general new members or to rsd group.

I am Jenny - aka jpcrps - am just at the one year anniversary of the foot surgery which caused dx of crps. Prior to that about 2 years dealing with grinding pain in 2nd MTP of 2nd left toe, mostly due to playing tennis.

I seem to be having spreads which began with prickly burning but have recently turned into full on burning pain in arms, hands, both feet (as opposed to just the left foot) and thighs.

I have participated in another online group and am looking for a supportive community without draconian admin personality issues. I also host a micro support group online, which was set up by my husband to support my need to connect with others who have this condition.

Looking for friendship, mutual support, kindness and understanding.

Mahalo,
Jenny
jpcrps is offline   Reply With Quote
"Thanks for this!" says:
ginnie (11-23-2012)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Introductions CoolAngel26 Survivors of Suicide 59 08-07-2014 07:07 AM
An introductions thread -- ConsiderThis Weight Loss & Healthy Living 26 07-02-2013 11:35 AM
Introductions biggunks New Member Introductions 5 05-08-2010 06:06 AM
New Member Introductions forum Jo*mar General Health Conditions & Rare Disorders 0 01-29-2007 02:32 PM
New Member Welcome & Introductions Chemar Social Chat 0 01-29-2007 12:12 PM


All times are GMT -5. The time now is 05:05 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives