Questions for surgeon - Page 2

Hannabananna · 11-14-2012, 02:55 PM

yikes ...sitting would have finished me off...I was aat least able to walk around....it is so delicious to sleep in!!

Jo

Rrae · 11-14-2012, 03:01 PM

Quote:

Originally Posted by Hannabananna

yikes ...sitting would have finished me off...I was aat least able to walk around....it is so delicious to sleep in!!

Jo

Yeah, with me, I can't even stand up for more than 5-10 minutes. Trying to cook for my family can sure bring on the tears sometimes. It's sooooooo frustrating!!

Hannabananna · 11-17-2012, 07:20 PM

I have an odd sensation at times...like a shadow of stimulation...a short'mild buzz of the SCS when it is off. Now I thought that it was just a phantom thing or a nerve memory then the othernight I woke up choking cuz I have this cold and my nose was way clogged..my mouth dry and I cough so hard to clear my throat that I felt a shock wave go thru me---all on the lines that I feel my buzzing...especially feeling it in my knees for more than a few seconds.

Now I know already i am one wierd chick (yes even before the SCS)..is there anyone who has had this experience too?

Also I now have insurance...BC/BS has a policy that get me into an office at the BCBS acceptable amounts...and just as devine intervention would have it...the doctor cancelled till Monday and now I have the insurance to offset the cost.

Must be all this "Prayer in the Air" making miracles.

Johanna

Mark56 · 11-17-2012, 10:48 PM

Noticing Blessings and Miracles around us is indeed a wonder of wonders! So VERY glad you have insurance! Yea Johanna!!!

My surgeon has sworn there is within some patients a latent continuity of effect which can show us the Buzz after the unit is switched off. As with me, I have NOT noticed the effect. I am more of a light switch phenom.... light on.... light off, so when my unit is powered low or OFF, I arrive at a point where the Pain with a big capital P is right there. Thus I use my stim 24/7.

Now as to that effect of a doubling or tripling or MORE of effect with change of position or lying down, absolutely,,,, this is an occurrence with me. Happens every time.

Prayin all will be WELL,
Mark56

Hannabananna · 11-18-2012, 03:34 AM

Morning Mark,
Well then you can confirm for your doc...it happens to me and makes sense to me too as the leads are conductors.

I also know what you mean about those "bursts" I have the adaptive stim and before they had it programed in I had those bursts of movement. ..Once the adaptive program was in place...the unit stops while you lay down and then slowly starts up again to the rythm that it is set for that position.
mine does stop when I go thru electronic opening doors and takes a good five minutes to restart. Enough so I try to turn it off before I go in stores tho like most of us...it is just part of my daily sensations if I am using it.

Indeed miracles abound
Johanna*

Jackiey · 11-18-2012, 03:43 AM

Johanna I do remember my doc saying that some people feel the stimulation for awhile after it has been turned off. Wonder is that what you are feeling?

I don't turn my stim off at all its always on. I turn it down low at night when I try to sleep but to turn it off altogether wouldn't be an option as I can constantly feel burning and pain, yes even with stim on!!!!! So I turn it up quite high hence use a lot of juice

Delighted about your insurance too

Jackie

Hannabananna · 11-20-2012, 07:08 AM

Dear Friends,
I saw the surgeon yesterday...4 x-rays...read outs on the SCS from the rep.
Every thing is in perfect place and funtioning, Scared in just fine. Battery and pocket look/feel great...I wasreminded how to tweak the unit for one of it's settings and my meds were written without any question. All were happy to see my progress and the doc asked that I give it a full year before we talk removal.
My unit is theMedtronic Adaptive Stim...my surgeon says the Medtronics are giving him the best results. The rep wants me to send along the link for this site.
There is also a webinar on the Metronics site...you have to dig a bit to find it---scheduled for the 29th Nov and sign up forit. Any education about my gizmo is appreciated.
So I have decided to make gizmo my friend.
Oh and get this...as I am checking out and oh so stressed about themoney of all this...they just said ..we will bill the insurance then bill you! I knowI have to pay...I just love God's humor...Miracles are supposed to happen everyday!!
Thank You God!
Going out for my walk cuz I have no excuses anymore.

Rrae · 11-20-2012, 07:45 PM

Quote:

Originally Posted by Jackiey

Johanna I do remember my doc saying that some people feel the stimulation for awhile after it has been turned off. Wonder is that what you are feeling?

Jackie

yes, and there's even a word for it..... 'paresthesia' or something like that?

So glad things are going your way and that the insurance is on your side!!

You should consider NAMING your gizmo!! Lots of us have!

Rae

Hannabananna · 11-21-2012, 04:56 AM

Thanks Rae,
Now I have a "word" for it I will pass that along to the rep also...really nice guy...just he looked at me like I had overdosed on my meds when I mentioned what I feel.

I have been thinking about a name...I have hated "gizmo" for so long that nothing polite comes to mind yet.

L&L
Johanna*

Mark56 · 11-21-2012, 07:49 AM

The group named mine PJ for Praise Jesus since I write pretty openly there. Then Rae actually named a foal after it..... pretty cool!

Mark56 and PJ