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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Almost 6 months PCS and my first Neuro visit yesterday

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Unread 11-27-2012, 12:43 PM   #1
Chris4329
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Default Almost 6 months PCS and my first Neuro visit yesterday

So after almost 6 months (with a major relapse after the first month), I have finally seen the neurologist for the first time. My worst symptoms at the moment are simply concentration problems, strange tingling/throbbing behind temples, the entire back of my head aches, and problems sleeping.

My neuro basically said he is confident that I will get better and I should now take small steps to re-establish my normal life prior to the concussion. Problem is my life prior to concussion was composed of excessive drinking, late nights, unhealthy food, and fast sports. I forgot to mention the drinking but when I said that maybe I should exercise he said "did you do that before?". I said no and then he reiterated that I should try to do everything exactly as I was before.

At the time I was thinking this is all great news and I was like but today I'm all like
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Unread 11-27-2012, 01:21 PM   #2
Lightrail11
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Hi Chris. I suggest that the “small steps” toward your normal routine should be healthy ways to reestablish the damaged neuro pathways, to alleviate the concentration and sleeping problems. Alcohol will inhibit this recovery.

http://www.msktc.org/tbi/factsheets/...c-Brain-Injury

http://www.tbicommunity.org/resource...Spring2008.pdf

Good nutrition should also be part of the recovery plan. B vitamins, fish oil, and a generally healthy diet are important. Mark has a good list on one of his other posts.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was traumatic brain injury and multiple fractures (pelvis, ribs, skull). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Unread 11-27-2012, 02:10 PM   #3
Chris4329
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yeah I'm just wondering why he would blindly say that I should return to all my regular activities without knowing what they are.

Perhaps he thinks my issues are psychological? That's my only logical reasoning for such a diagnosis.


EDIT: forgot to mention, he also said I should give up the vitamin supplements and Tylenol...

Last edited by Chris4329; 11-27-2012 at 02:55 PM.
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Unread 11-27-2012, 04:41 PM   #4
Mark in Idaho
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It answer is quite simple. The neuro does not know much about concussion. This is not uncommon. You will find better advice here.

Take it slow and start adding activities to your day. Keep your exercise low impact. Go in 2 week steps. Add a new activity for 2 weeks before adding another activity. If you cause a return of symptoms, stop the last activity added and give it a couple weeks to get back to symptom free then add another activity.

You know the activities to avoid. Use this time to establish a new routine of activities that will not set you up for future relapses. There are plenty of lower risk activities that can provide a full life experience.

My best to you.
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59 years old, retired due to disability, married 34 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate/short term visual and auditory memory problems, slowed processing speed, visual/auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine for 14 years and gabapentin for 12 years. Added L-Tryptophan and stopped paroxetine after 3 months of tapering. I currently take 500 mgs of L-Tryptophan AM, 500 mgs noon, and 500 mgs PM.


As of Nov 15th, Due to high stress issues resulting in PTSD, docs put me on 3 meds. Clonazepam but only for 30 days ) .125 mgs twice daily (Doc presc. .25 mgs 2x daily but half a tablet is good) , citalopram (Celexa), an SSRI , and olanzapine (Zyprexa), an atypical anti-psychotic that usually causes weight gain before bed. I lost over 30 pounds since mid July. It just stopped the weight loss. Took me off the gabapentin. I am feeling better than I have in years.

This great feeling only lasted a month. Back to the same old PCS doldrums.

May 2014, I am off the olanzapine due to a 6 fold price increase. Back on 600 mgs of gabapentin before bed.

I am also taking L-Theanine to help with GABA regulation


"Be Still and Know That I am God" Psalm 46:10
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