Hi everyone, I am new to this forum, so please forgive me if I am not posting correctly-never posted online before!
I have been reading these boards and others for quite some time and felt compelled to share my experience, as I have just undergone a PLF repair this past Tuesday by the surgeon mentioned in the previous post. The decision to undergo repair was based on my 2 year history of baffling symptoms (fatigue, minor imbalance 24/7, cognitive issues-it took a while to figure out my issues were inner ear related since I had no hearing loss or spinning vertigo) and a battery of hearing/balance tests performed which showed endolymph hydrops in my left ear (yet no vertigo, so it was definitely not classic Meniere's) and a mildly positive platform pressure test. I can't pinpoint when this all started but i did have a minor whiplash injury due to a fall around that time. I had tried diuretics and a reduced salt diet, which did help some, and tried calcium channel blockers, which gave me side effects. I also had an MRI and bloodwork to rule out other issues. I understood going in that this may not be a cure, and was the next logical step in the elimination process.
The surgery went well from a technical standpoint, and although there was no evidence of a leak, this is apparently not unusual at all-they just patch anyway. I spent 1 night in the hospital. I have had surprisingly little pain, and have only taken Motrin once. I cannot hear out of my operated ear, and this was expected until the swelling subsides. I had been hopeful that my balance issue would be immediately resolved, but this has unfortunately not been the case-my balance has worsened since the surgery. Aside from the usual swelling causing issues, the surgeon thinks that i may be in the minority of people who may have an increase in the hydrops pressure due to sealing off the supposed leak. I am increasing the dose of my diuretic and adding Valium for the next couple of weeks, until hopefully the extra fluid is reabsorbed-if it isn't, there is apparently an additional surgery that can be done to help remove the extra fluid. I am in wait and see mode and keeping my fingers crossed! I have had only very minor facial and tongue numbness, which is hardly noticeable and already going away.
Hope this has been helpful-if anyone has any questions, please feel free to email me (I think you can do that on this forum, right?). I will do my best to share my experience-I don't wish this kind of balance condition on my worst enemy, and know how frustrating it can be and how it can rob you of your former life. I also know how daunting it can be to try to get a diagnosis and to be faced with making a decision regarding surgery that may or may not help.
Wishing everyone the best in their journey back to normalcy!!